Update: Saw the neuro today. Talked about... - My MSAA Community

My MSAA Community

8,919 members20,601 posts

Update

Smartcloud1981 profile image
13 Replies

Saw the neuro today. Talked about everything that has been going on. The burning skin feeling and excessive sweating when it’s hot and humid is more the likely to the ms. The red red skin is from the meds. I need to limit my direct sun exposure and heat exposure. The arm going numb sometimes when i bend my neck is from the lesions I have on my cervical spine. Muscle pains and toe pain from the heat associated with work and being on my feet all from the ms.

Good news is I get to go shopping for sun hats.

Written by
Smartcloud1981 profile image
Smartcloud1981
To view profiles and participate in discussions please or .
13 Replies
jimeka profile image
jimeka

Sounds as though he was honest with you, at least you know now, and can try to accept your dx. Have fun with the sun hat shopping, post a picture, Blessings Jimeka 🦋 🍫 🌞

Smartcloud1981 profile image
Smartcloud1981 in reply to jimeka

He’s been pretty honest the whole time. A you know it’s just very trying. Get a handle on one thing two more pop up. The trying to stay out of the heat will be difficult. Just started a new job that’s puts me working with fryers and ovens.

I’m looking forward to hat shopping. So j can be able to enjoy some outdoor time.

jimeka profile image
jimeka in reply to Smartcloud1981

You are going to need your cooling vest for sure. All the best, enjoy the shopping, blessings Jimeka 🦋 🍫

Smartcloud1981 profile image
Smartcloud1981 in reply to jimeka

Looking into talking to them at work. I’m just not sure I can deal with the heat. The minute I get so hot my toes start to hurt and muscles and it takes forever to cool down.

jimeka profile image
jimeka in reply to Smartcloud1981

I hope that you can have a cooler position. The heat will only make you feel worse and is it safe for you to be in that position? Blessings Jimeka 🦋 🍫

bxrmom profile image
bxrmom

Glad you now know what's going on with you. You may want to get a cooling vest for work if you don't already have one. Good luck and have fun shopping for your sun hats 😉

erash profile image
erash

I like that you are seeing the rainbow in the storm 🌈

Let's see your hat😊

mrsmike9 profile image
mrsmike9

I haven't seen anyone say anything about toe pain before. Mine is all my toes. Is that yours or just one (or a few)?

Smartcloud1981 profile image
Smartcloud1981 in reply to mrsmike9

When it does happen it’s usually just a few toes but sometimes it’s all of them. Mostly the tips.

in reply to Smartcloud1981

Yes. They really feel like they are on fire or you have sunburned them.

mrsmike9 profile image
mrsmike9 in reply to

Mine are usually ice cold FEELING (even tho' they're warm to the touch). Sometimes it's just the toes but sometimes it creeps to the joint where they connect to the foot.

jimeka profile image
jimeka in reply to mrsmike9

How do you function? You have enough on your plate without toe pain. Hugs Jimeka 🤗

Smartcloud1981 profile image
Smartcloud1981 in reply to jimeka

I push myself through work. Feels worse once I finally get home and relax.

You may also like...

Update

of your prayers. I woke up in an awful amount of pain today. Only made it through 15 minutes of PT...

Update

start of Ocrevus. I finally received a call from my Neuro and the infusion site has been trained...

Update

call with my neuro a couple weeks ago. He was happy that there were. I new or enhanced lesions....

Update

Update

ms clinic & it wasn't the best news I have 11 lesions now & the dr told me that my sight will only...