Newbies this is especially for you. Apart from saying yet again take your DISEASE MODifying THERAPY, exercise, eat right keep records, I am going to suggest that YOU THINK before YOU speak.
Pretty simple really, CHOOSE the word that is less in everything except Doctors visits, of course. ms is an annoying inconvenience versus a Monster, ms versus MS. make things weaker, use language that trivialises, ALWAyS do every single thing that you can to give YOURSELF EVERY SINGLE ADVANTAGE.
MONSTERS scare me, but ms is just an inconvenience no big deal. I am not sure I am optimistic, I still get scared at times, but I learned that if I do not give something authority and power over me I am much better positioned to stand tall, and not cower in fear. This tricksy traveller wants to break me, I WILL NOT be BROKEN I WILL BEND. ALWAYS BEND no matter what because YOU CAN. Choose your words and thoughts to give YOU the ADVANTAGE.
Royce
I am not perfect, I just try to give myself an advantage, do it for yourself.
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RoyceNewton
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And MS can and IS a Very scary thing aka monster to some people RoyceNewton And to be able to give a "face" to be angry at, can be a really great coping mechanism.
To me it's this thing they call MS or Monster that I share my life with.
And always it is what gets YOU along YOUR journey. I do NOT travel anybody's path journey but my own. Having said that remember I NEVER have all of anybody's answers, not even my own sometimes. If somebodies has a MOnSTER that is their path, I only speak for me and suggest a possible alternative way to observe and live with our experience. There is no right or wrong and I DO understand that we are all different.
Yes Royce I can maybe agree with you to a point, but when you can’t take DMD’s , as you say we are all different. Some of us particularly those of us with PPMS and are allergic or too sensitive to them. Also acceptance that you have ms yourself is hard enough, but to find out that your son of 32 years may have it, is harder to come to terms with. Blessings Jimeka 🦋
Your son? Has this been since I've been in the baby bubble and I've just not seen your posts?! Goodness, I am sorry. I know you'd take double what you have now if it meant your child could be spared 😭 💔
He is going through the testing stage now. But things are so slow in the uk. Also if it is ms his extra insurance won’t cover him because he had to declare that I have it when he applied, so they won’t cover extra treatment. Blessings Jimeka 🦋
jimeka Im so sorry ☹️ That’s not extra, you are two different people and you’re not being provided with a DMT right now anyway. It’s a special kind of evil to say since the mother is receiving benefits then her child will be denied. I thought one of the goals to having national health care was to create a healthier more productive population. What good are all these options if your country won’t let you go near one!
Sorry, it’s maddening. I don’t know if I would have the positivity and hope that I do if we traded shoes, kudos to you! Lots of love to you and your family😘 I hope it’s not MS and I hope it’s treatable. Please keep us updated, I know this will be a long process.
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