Ocrevus update video and short harmonica... - My MSAA Community

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Ocrevus update video and short harmonica clip

Allen5280 profile image
26 Replies

Ok i finally got one done, I decided to do both at the same time. Here is the link to my Google drive.

drive.google.com/file/d/1Jr...

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Allen5280
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26 Replies
jimeka profile image
jimeka

I would like to hear more. Well done. I know the tune but I cannot remember the name. So pleased that you are doing so much better. Praise the Lord, an answer to prayer. Blessings Jimeka 🙏 🎶

Allen5280 profile image
Allen5280 in reply to jimeka

I'm going to try and refocus my efforts in learning stuff I can post. Some like in this case revisiting past songs with new techniques I have learned. Thank you jimeka

greaterexp profile image
greaterexp

Wow! Great video, Allen! You’ve got a terrific talent. I’m so happy you shared it and that you’re doing better. Hurrah!

Allen5280 profile image
Allen5280 in reply to greaterexp

Thank you greaterexp

Morllyn profile image
Morllyn

Wow Allen5280 , both the harmonica piece you played and your gain in energy and all around better feelings are awesome! I will keep good thoughts that they all continue.

Thanks for sharing your talents with us!

Allen5280 profile image
Allen5280 in reply to Morllyn

Thank you Morllyn

Morllyn profile image
Morllyn in reply to Allen5280

You are welcome.😊

deannabg83 profile image
deannabg83

Awesome Allen! Thanks for the update!

Allen5280 profile image
Allen5280 in reply to deannabg83

Thank you so much deannabg83

johnMSAA profile image
johnMSAAPartner

What a talent, Allen5280 ! Rocking the harmonica!

- John, MSAA

Allen5280 profile image
Allen5280 in reply to johnMSAA

Thank you johnMSAA , learning to play the harmonica has been something I have learned to do in spite of MS. It goes a long long way in my quest of overcoming MS, with all that it has taken. Finding a purpose for life, with all that has changed, has an immeasurable amount of inspiration when fighting this horrid affliction. Being able to learn something new despite the cognitive challenges. With all that has been lost, one thing, just one simple thing challenged and achieved, it's a huge win! I tried learning the harmonica when life was in full function, I failed, I gave up because it was just to hard for me. Y'all have no idea what it means to me to have some affirmation of my new talent. Thank y'all so much!

kdali profile image
kdali

Awesome!

Allen5280 profile image
Allen5280

kdali Thank you!

Tinker-Belle profile image
Tinker-Belle

I love, love, love it! Thank you so much for sharing. I saw this last night but my temperamental tablet kept shutting down. I gave it (and myself) a night of sleep and just tried again. You made me smile first thing in the morning. What a wonderful way to start the day. Thank you!! I'm happy to hear you are doing better with Ocrevus. I'm also so happy you faced your camera shyness and shared with us! It was so nice to see you and hear you. I really enjoyed your harmonica playing, too. I love how you played it two different ways as well. You are very talented. I love music myself...many different kinds. You mentioned liking contemporary Christian as well. Have you ever heard Josh Garrels? Not sure if he's considered contemporary Christian but he has definitely written/sung some beautiful Christian songs...Farther Along, At the Table, Pilot Me, Born Again, ...etc... I love his voice. Not sure any have the harmonica although we go to a church that has incorporated the harmonica into some of their worship music and that is fun. I will have to ask my son what songs. He's the musical one...I'm just a music listener! Anyway, sorry for rambling. My mind goes in a million directions. 🙃But, again, thank you. I thoroughly enjoyed it! Wishing you a beautiful and blessed day.

Allen5280 profile image
Allen5280 in reply to Tinker-Belle

Thank you Tinker-Belle , feel free to ramble on! 😁 I'm not sure if I have heard Josh Garrels but I'm m goong ro look it up! I have been coming up with my own harmonica parts to songs that don't have a harmonica in them. So I will defiantly check out new music looking for projects 😁

Tinker-Belle profile image
Tinker-Belle in reply to Allen5280

Let me know what you think. I'd love to hear your renditions! 🎤🎼

Jbahnan profile image
Jbahnan

GOOD JOB ALLEN, TALENT!!

Allen5280 profile image
Allen5280 in reply to Jbahnan

Jbahnan thank you!

bavery207 profile image
bavery207

Allen5280 I loved your post, but it has reminded me how much I have forgotten. I should know that song title immediately, but I can't remember any more. I also loved your story about "Why is everyone going so slow?" Here's hoping for more improvements as the treatments continue.

Allen5280 profile image
Allen5280

Actually, I ended up forwarding that video link to family as well. My sister remembered. It's Minuet in G by Bach. I couldn't get Google to pick it out for two reasons one, I'm playing it in Bb and second I'm playing it imperfectly and at a different tempo! LoL so if I keep gping with it in my own way, I just might have to call it a Redneck Rhapsody of Minuet Gmajor in Bb 😂

carolek572 profile image
carolek572CommunityAmbassador

Hey Allen5280,

I am responding to your update on Ocrevus, and your serenade with your harmonica. You have talent! You should pursue finding others in a musical group so that you can 'jam'. I hope that you know what I mean.

How you are doing on Ocrevus? I am scheduled for my second Ocrevus infusion later this month. I am hoping for more positive results and hope that you are still seeing positive results as well.

You have a God given talent playing the harmonica and connecting with your audience!

Keep playing, and keep smiling :-D

Carole

Allen5280 profile image
Allen5280 in reply to carolek572

Thank you carolek572 , I think about finding some others to play with quite often. I just can't figure out how I can commit to being able to be on any kind of schedule. I don't ever know when I'm going to feel up to it. I working on getting there but it's still a ways off. I did starts going to the music store locally to try and meet some new people to possibly jam with. All I got was people telling me about another harmonica player that is so good at it. Theyndidnt even have time to listen to me play, they were to 'busy". So I have thought about it often, still trying to work my bugs out and keep fighting what MS is trying to do to me. I'm doing pretty good with Ocrevus I have done Mutiple posts if you would like to check out my posts I try and keep updated going. It's the first MS medication (DMT) I have been able to tolerate. I'm just trying to take things day by day and moment by moment and hopefully the right doors will open for me. We will see. I still have a lot to learn on the harmonica but it's coming along. I haven't been able to do anything new recently. I just try and stay practiced up. I'm working on finding some new songs. Hope and pray ocrevus helps you too.

Allen

carolek572 profile image
carolek572CommunityAmbassador in reply to Allen5280

Thank you, Allen5280, for your timely update. I have read some of your Ocrevus updates. I just wanted to see if you had anything else to offer.

You have a gift. And you definitely are happy playing the harmonica. PLEASE - a request - and only if you want to, I request another 'mini' concert posting from you.

Keep smiling,

Carole :-D

Allen5280 profile image
Allen5280 in reply to carolek572

I will do my best, I was just thinking of posting another video here within a week or so. I'm planning to do a review of my new walking "sticks" (forearm crutches). I was throwing around the idea of what I might possibly play as well.

carolek572 profile image
carolek572CommunityAmbassador

:-D

Kevin_McMillan profile image
Kevin_McMillan

Allen5280, that is awesome! I'm Glad you are doing better, great harmonica playing to! try not run over any people at Wal-Mart...

Take care,

Kevin

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