Hello, I am a 67-year-old Californian happy to chat about this disease with anyone. I spent 14 years using a wheelchair out of the house, to be honest sometimes in the house for speed or because of fatigue. About 6 years ago my right foot started to work again a little bit, 4 years ago I joined the MS Achievement Center here in Sacramento for a 5 hr day of body and mind training. I now use the walker most times but have a little power chair in the trunk for the long days or when the fatigue would make miss what I was walking to do.
I have been diagnosed for over 20 years and am still R/R. I know that because after taking Betaseron for about 8 years I was told I was moving on to Secondary Progressive and because I was "so" educated about what was then the "ABC"s" of disease-modifying drugs I chose to go off even though the doctor wasn't as sure as I was that Betaseron was only for R/R . Almost two years later I had one of my worst relapses so after a brief try with Tysabri I went back to Betaseron which had worked all those years at keeping relapses away, until last year when I just kept having more bad days than good and the MRI showed active lesions and so I am now back on Tysabri.
I guess I confessed all these drugs I have been on forever to encourage anyone who is diagnosed to heed the words "get on a DMD". There are so many available now from shots, pills to infusions. You might not feel better like taking an aspirin, but it stops progression and maybe keeps you safer like blood pressure medicine keeps people from heart attacks or strokes and the way you know it's working is you don't have a heart attack or stroke.
So I am interested in what clues other use to keep moving and enjoying the life we have.