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Are your people rude?

I thought I was better but my legs go numb when I am in a sitting position. Seems like it would be a lumbar lesion? I feel so much better than I did his weekend (hubs thought we were ER bound and said he'd never seen me so sick). I've never worked in a medical office before, but it must be very difficult if one needs to be so rude to a patient. It's very disappointing to have such jerks in my field. Ive been told 50 times to call in if blah blah blah, but now I'm like, ick, no thanks.

Update: The nurse never returned my call yesterday. Feeling worse today. Blurry vision, cognition is in the toilet, legs ache up to my butt and I feel like I'm wearing tight, painful ice socks. The on call MD was very kind, listened to my history and current concerns, and said no ER visit unless my mobility is an issue. He's calling in a 6 day steroid course. Fingers crossed!

Update #2: Day 3 was awesome sauce! My old symptoms totally gone, and the new weird stuff was barely there. Day 4 I just have bubbles in my feet. I know sometimes the symptoms return once the steroids are done, but that's not the norm. What's been your experience when a dose pack has worked for you?

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I know how you feel but you can’t let someone who doesn’t know what you are going through make you feel that your pain is not real because you and I and everyone else on this site knows your not making it up. If you have to talk to your doctor(you know that bumper sticker that says)

“JUST DO IT “ than do it.

Hey 👋 I just figured out what that meant. Ok sorry about that

Call your doctor and let that person know that your pain is for real Because when you go to the

ER there good doctors there but they don’t know what is going on with you, your doctor does

Good luck and I hope you feel better soon.

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👋 😂

Jerk, RN is suppose to call me back today, but I'm not holding my breath. I have my MD's personal email (she gets baby pics too😍) but I was doing like they told me first.

At least the ER would be polite. Possibly useless, but they wouldn't make me want to throat punch anyone! Thank you! 😘 I hope I do too, I have Vegas coming up and I'll go on crutches if I have to.

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You asked if my people are rude and they are not but let me tell you my last doctor GPA was very rude I had to tell him I had something wrong didn’t believe me guess what I had MS I was in so much pain and I had all the symptoms of MS I was partially blind in one eye I had foot drop and hug pains and I had to say how do I find out if I have MS or Lyme disease Do want to know what he said Don’t jump to conclusions. I had my 4 year old with me I wanted in the worst way to tell him where he could go but I was a good mommy and didn’t. I do know about rude doctors and nurses. But I won’t get into it. We all don’t need the stress. But if you aren’t getting the help you need or want speak up LOUDLY. That’s the only way you will get anything in this world.

Good luck to you I hope you feel better soon.

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Wow, that's terrible! I don't know how you could have that much going on and not get check out properly. You're right about not needing the stress! I got myself some flowers and sugar free chocolates. Ty 😘

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Candy 🍭 sounds good 👌 😎

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Ssdw1958,so sorry about what you are going trough.No one on this earth can feel what you feel but you just have to be strong and positive all times

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Ty!

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Oh that was back in May of 2004 by the first of June I had a new GP and a neurologist. I don’t fool around any more with doctors who don’t know what there talking about

But thank you all for caring

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So so sorry kdali

Yes, medical care sucks! I think the care part is a misnomer much of the time. The rest of the time, it's simply fraught with mistakes.

And hard to fight to be listened to when u feel like crap 🙁

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Sad!!! I was so surprised by the rudeness that I didn't mention two possibly important things; my feet hurt when I wake up and my legs feel achy like I have worked out, or like I'm walking at the beach in the sand (sadly no key lime pie for me) 😂 😵 It's not even care, she just had to relay a message! What's wrong with people ☹️ Yes it is, and harder when your brain doesn't work right. I'm sad that you have similar disappointing experience.

I don't know if this is just how it goes and you just accumulate weird crap along the way until finally you get tagged with secondary, but that's always in the back of my mind.

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This is it! Medical assistants are sometimes robotic sentries that are trained to keep u away from the docs.

The docs, who mostly know me from when I referred patients to them, are in such a hurry that I have to speed talk to give them my history. Then they just think I sound anxious. And, if you don't fit into their pre-determined diagnosis and treatment plan, they force you to fit.

Finally, a doc recently said, "I really don't know, but I did some research over the weekend and maybe we could try this..." I wanted to kiss him for actually listening and admitting that he didn't know.

My parents care in south fla has been horrible. I don't know how anyone gets thru the medical system w/o an advocate.

If there's a soapbox emoji, I'm standing on it 😬

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😂😂😂😂@robotic sentries. I guess I've been lucky so far! I'm glad you found someone who has taken an interest in your health. 😘

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erash , the best professionals are those who know their limitations. When I lived in S. Florida, I got great care because my neuros and I were personal friends and on first-name bases. I had both their private cell numbers. Not so here. And I often wonder how people who do not have dr friends can even get treatment!

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I've dealt with incompetence...or the run around...more than rudeness. Although, one time, I do admit, I told my neurologist I wanted to reach through the line and choke one of his employees. Frustrating to say the least. Best wishes...

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👏at least you said it!

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I had a migraines starting back up since January. Been sending notes to my doc thru patient portal to have her call in a simple script for a migraine med i had taken in the past.

2 weeks ago i almost OD’d on excedrin migraine. My home health care nurse came and wen i told her what had been going on she was able to get on the phone w my doc and i had my migraine med with in a few hours.

But she did make me flush my excedrin down the toilet before she left. I had taken 10 before she got there.... 😁

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Omg, I can't believe you were not bleeding out your butt 😵 She sounds like an awesome nurse!!

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When u have a migraine - all reason goes out the window. Its a great thing she showed up wen she did or i probably wud have fallen or cut myself and bled to death. I wasnt thinking clearly at all. But man wen she told my doc that i had been trying to get in touch with her for the 3 months before that.... i am sure someone got in trouble

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My mom has them, and I remember her in the recliner in the dark when I was little, I had to whisper. She had no meds then except Tylenol and was so miserable. I feel for you and understand your desperation. I'm glad she saved you!

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Ya i thank god for migraine meds. My mom had migraines too and it was awful to see. I inherited her thick hair and her migraines!

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OMG, Midgey_Midge06 . I remember getting those horrific migraines. I went so far down the opiate road on those, I was sucking on Fentanyl lollipops which gave me about 2 hrs worth of relief before I was back banging my head against the wall again. The only thing that ended up helping after 25 yrs of suffering was Lyrica. Probably a fluke, but hey, worth asking about!

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Totally worth asking abot! I see my neuro in June and will ask him. Thank u for the tip!

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You're welcome. Let me know what the dr says!

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I have worked in a medical office as the nurse and answering phones. There is NO reason to be rude to patients. People like this should not be working in a medical office. Maybe you should consider changing doctors?

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I would if my doctor was like that too, but I think so far she's been incredible 😍 It hard to find a good neurologist, so I'm scared the MS specialist here would be meh. The others here I've worked with not the hospital and nope. This does make me wonder if I would get any from them help if/when the MS💩 hits the fan 😵

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True that...

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My feet are numb always when I sit at any kind of chair. I'm sitting at kitchen table now using laptop. Yesterday at skin doc appt I kept on having to get up and walk around to wake up my feet. Then someone else would take my chair. Same thing day before at the eye doc. Just one more annual check-up doc and that part of my year will be done. Thank-Goodness!

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How long has it been that way? Are your feet or legs sore or cold?

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My feet feel normal temp to the touch. Don’t feel cold or sore just numbness without any feeling. Bad day today with them. 5:30 PM, 80 degrees outside, I’m laying in bed with heating pads on feet. No shoes or slippers feel good today!

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I might have to try that!

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Its true about needing to fight the hardest when youre at your weakest. My primary care dr told me in January it was time to accept i need to retire, put in for disability. I did and was denied. I asked him last week to fill out a residual functional capacity questionaire to be added to my appeal, he refused, sent me to my neuro as she is the dr treating me for ms which is what i am retiring about. She refused to do it either saying it isnt her job to do it! Really! Luckily one of the receptionists in the office is as appalled as I am about the whole thing has enlisted the help of my former, mostly retired,neurologist who is very willing to help in any way he can. Im hoping this coming Thursday will bring me some better news.That is the day he goes into the hospital/office and i have an appointment that day with my current neurologist in that same office. Im keeping my fingers crossed, trying to remember there are good people who honestly want to help when they know your not getting good treament.

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Thank goodness for the receptionist! I hope you get better news too! 😘

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I hate to hear that. I’m sorry you’re going through it. I never treated patients like that when I was a nurse, but things are so much more impersonal now.

I recently went through something similar, and couldn’t get the doctor’s office to call back in a timely way. Fortunately, I got better on my own, but I’m not sure if there was disease activity.

Get better quickly.

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Thank you! I'm wondering if I was lucky it's a weekend and got the on call doc. I'm glad you're better!

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Hope u feel better soon bless u hun xxxxxx really hate hearing about rude incompetent doctors and nurses! There is no need for that sort of behaviour it drives me mad xxx 🙄🙄🙄🙄

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Thank you! It's senseless ☹️

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It is hun no excuse for it whatsoever! 🙄🙄🙄

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kdali , unfortunately this is the health care system we live under. My neuro just sold out to one of those giant health care corporations, and when I can get someone on the phone they are nice and they try to help me, but more often than not I get stuck in voice-mail hell, am forced to leave a message which they promise will be answered "by the end of the next business day" (which is exactly what you want to hear when you are having a relapse or are in so much pain that you don't know what to do) and then you don't get a call back anyway. And of course if you do get a call back it's from a PA at best. I don't want to speak to a PA. I don't want to speak to a nurse practitioner. I don't want to speak to a medical assistant. I want to speak to my doctor, damn it! But these days I think it would be easier to speak to God. I, too, am horribly frustrated, especially here in Northern Arizona where there is such a dearth of doctors that my neuro is in Phoenix, 2 hrs away! There are only like 2 neurologists here at all, and of course none of them are MS specialists. I am so afraid that this is the way of the future--our lives are going to be in the hands of alternative providers and if you want to see a real degreed and trained physician you'll have to go to another country! Good luck and hope you feel better soon.

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2 hours?! Yikes. They must have to fly out people having strokes where you live. Scary. Thank you!

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A lot of medi-vac by helicopter does go on here because people keep falling off the mountains! Strokes--well, let's just say I wouldn't want to test the system.

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I went through a round of at home steroid infusions 3 weeks ago and I can honestly say I felt much better for about 2 weeks then that all went to he'll mow I feel worse. I can barely move. If I had a choice I would never do the steroids again but I'm sure after my neurologist appointment on Friday he'll be getting me another round. Been 4 months since he put in the orders for a new ms med and the company can't even get my bloodwork to the laboratory to be able to start the medication. I hope your systems don't return.

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That's terrible! I'm so sorry ☹️

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Update: I guess she was having a bad day or week. I was suppose to have a MRI 🤷‍♀️ and they didn't know I got steroids over the weekend. I thought about calling in on Monday to let them know I was better but my instructions were to call if I was worse (and also I didn't want to tempt fate my saying I was better). The apology was much appreciated.

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Update #4. I'm laughing now at the system. My last email said an MRI was ordered and the last phone call said I didn't need one 😂🙄🤷‍♀️ My insurance wants me to go somewhere the order wasn't sent to, and I'm thinking, yeah, nah, let's not complicate it anymore! I'm scheduled on the 23rd for a scan.

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I've lost count of my updates, but I'll tell ya the last 4 weeks have a comedy of errors. A few days ago a clerk tells me my test wasn't ordered because I was feeling better. 🙄 While the second round of steroids was nice, the stairs remain a challenge 😵 (particularly carrying V). The order was sent to two systems and insurance was set up to pay the wrong one. Flying all day, I land to hear there's no order for my MRI at 6pm the day before the test is scheduled (all while the airline is trying to locate our stroller). It's a good thing I dye my hair or it would be solid grey now. Anyway, it's done! Our first glance looks good, and our fears of having to change meds/no more kids are alleviated for now. The official report will probably be sent to another country knowing my luck 😂😂😂😂 I still lived my life anyway and was able to do what I wanted while catering to MS needs. I won $80 at the penny slots! I realized this was the third music festival I've attended during a relapse and I feel like a boss 😂🏋 🎉 in a happy sloth sorta way.

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