High AST levels: Hi, ive been taking rebif... - My MSAA Community

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High AST levels

Muchomonty profile image
13 Replies

Hi, ive been taking rebif rebidose since January and my liver enzymes are high. What is the next best course of therapy since i now know rebif is not for me? Thanks.

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Muchomonty
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13 Replies
Royjr profile image
Royjr

It’s important to talk to your neurologist about this especially since you most likely have to switch DMT.

Muchomonty profile image
Muchomonty in reply to Royjr

Thanks, I have an appointment next week, which is perfect timing! Im just interested in some suggestions to speak with the neuro about.

Muchomonty profile image
Muchomonty

Thank you so much.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi ya Muchomonty how are you today? 😊

Sorry to hear about the liver enzymes, and changing your DMT. 😔 Like Royjr said tho, it' deffenitly a conversation to have with your Neuro. ☺

And definitely check out what starlight5 gave you. It will help you see what' out there, and help you make decisions. I hope anyway.☺😀😅

Jump in anywhere!

Jes🌠

Muchomonty profile image
Muchomonty in reply to Jesmcd2

Hi Jes, and thanks for the encouragement. Ive checked out the link and its good info. Though it looks like many dmts raise the enzymes.. :( will wait and see what the doc says on Wednesday.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Muchomonty

Has your Neuro suggested another DMT to you yet? Muchomonty 😊

Jes🌠

Muchomonty profile image
Muchomonty in reply to Jesmcd2

No, i go Wednesday

Fancy1959 profile image
Fancy1959

Muchomonty, it's Fancy1959. Hello and welcome to our awesome chat room. You have found a safe place to come and ask questions, voice concerns, or simply speak to others to truly understand what you are going through. Now having said that first and foremost we are not doctors so we try not to offer medical advice. What would you offer are commonly shared experiences were you can learn about experiences you might be having because of what we've already experienced. To ask what your next best course of action is if your rebif is not working well with you it's a question you need to ask you your neurologist. Do not delay the asking if your liver enzymes are increasing. Your liver is the third most important organ in your body and it's nothing to mess around with. Keep track of your symptoms and call and get in to see your neurologist as soon as possible. There are tons of other EMTs out there so certainly one can be found that will work with you better than the rebif. Until we get to speak again please take care and remember that together we are stronger! Fancy.

Muchomonty profile image
Muchomonty in reply to Fancy1959

Thank you so much!

greaterexp profile image
greaterexp

Welcome! I hope you get some clear direction with your DMT choice. There are so many more now to choose from, and though that can be overwhelming, it also means it’s likely we can find one that works well and one we can tolerate well.

I hope you’ll come back and let us know what you choose and how you’re doing. You’ll find lots of support here as you work through it all.

Muchomonty profile image
Muchomonty in reply to greaterexp

Thank you for the words of encouragement!

DahlblomDriven profile image
DahlblomDriven

Hey dear, am going threw the same thing that you did. Have you found anything else to work for you?

Muchomonty profile image
Muchomonty in reply to DahlblomDriven

Not yet, but ive been off of it since April. Will start aubaggio soon though. Hope it works.

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