Anyone on Tysabri?: Anyone on Tysabri? My... - My MSAA Community

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Anyone on Tysabri?

cats3 profile image
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Anyone on Tysabri? My neuro is suggesting I go on it. I have been on Betaseron for 15 years with not much change in my symptoms until a little weakness last year for a couple weeks and just recently.

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cats3
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cats3 profile image
cats3

My recent MRI really didn't show much change so they are really going on my recent weakness. I am JCV negative with a reading of .34. My neuro said that they will do blood every time and watch for the changes. You can really go up to 1.0 before they would have you decide to go on another medicine. He said that could take several years if it even goes up

janetb1968 profile image
janetb1968

Hi cats3 I've just started on Tysabri I have it every 4 weeks here in England. I've only had 2 doses up to know and its been ok just tired when I've had it for one night xxx I'm also JCV positive but very very low and have my bloods taken regularly and MRIs xxxx

Kenu profile image
Kenu

I was on Tysabri for seven years and did great 👍 Only side effect was a day of fatigue afterwards. Was still working, so I did them on Friday afternoon and by Monday I was ready for work 👍. The reason I went off was I got stage four throat Cancer and my white t-cells went down so I had to change 😐 Been on Aubagio for the last fifteen months and doing great 👍. Good luck as I was happy with Tysabri 🙏🐾Ken

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