Newbie with issues...LOL: Hi! My name is... - My MSAA Community

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Newbie with issues...LOL

vicarder profile image
22 Replies

Hi! My name is Vicky and I was diagnosed with RRMS last year, but was mis-diagnosed in 2012. I am having problems with my hubby; isolated from my church; no local friends, and live in a community I love to call "the armpit of the south". I am looking for friendship, advice and I am happy to give back when I can.

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vicarder profile image
vicarder
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22 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Well hello there vicarder ☺ you have come to the right place! We always love new family! Armpit of the South huh? I live in he**Seville up north! 😁😂🤣😂

Welcome to the family!

Jump in, anywhere! Tell us more about yourself, kids, age, MRI's, meds, Dr's. 😂🤣😂

J🌠

Doubled51 profile image
Doubled51

Hi vicarder . Welcome to the family. I was diagnosed with RRMS last year also and am currently on Plegridy.

I’m also from the south in the sticks and hills of North Ga.

We’ve got some good folks on here so jump right in and make yourself at home.

Donnie

greaterexp profile image
greaterexp

I’m sorry about the diagnosis and the issues you’ve been experiencing. MS tends to take away much more than physical abilities. The good thing is that you’ve recognized it, and it looks as though you are willing to do something about it.

Getting some counseling for your marriage could be wonderful for both you and your husband and help you both learn how to adapt to all the changes you’ve been faced with.

Volunteering can be so helpful in preventing you from withdrawing. Knowing we are helping someone else reworks our perspectives and boosts our moods.

Venting here and arming yourself with ideas and information can help you stay focused on your goals.

There is a post I initiated about how to begin this new part of life. Folks have put forward some great ideas there. There are some MS “veterans” who are so kind to help those of us who are newer to this thing.

Know that you are very welcome here by people who truly understand.

Let us know how you’re doing.

vicarder profile image
vicarder in reply to greaterexp

How do I find your post?

greaterexp profile image
greaterexp in reply to vicarder

If you click on my name, you’ll be taken to my page which includes all of my posts.

I think you could also use the “Search My MSAA” box in the upoer right hand corner of your home page. You could enter “Beginning” to find that particular post, too, or any topic.

Kenu profile image
Kenu

Welcome to our crazy 😜 MS community 🤗 This is a great place to vent and find out lots of great information about MS from people who care 👍🙏 I was diagnosed in 1996 and still upright 👍 Have been on seven different DMT’s thru the years as new ones came along and as my symptoms got worse. I am on Aubagio now with no side effects and last MRI was stable and no new lesions 👍😊. Hope you have a great day and acquire the help you need 🙏🐾 Ken

bxrmom profile image
bxrmom

vicarder You have come to the right place :) As others have already said, Welcome to the family! Lots of friends here, look around, vent when you need to, ask questions, look around.

Look forward to meeting you,

Jessie in cold Michigan

Midgey_Midge06 profile image
Midgey_Midge06

Hi Vicky! My name is Vicky as well! (Midgey is my fur baby)

I also live in PoDunk middle of nowhere east Texas. Welcome to the family! U will have lots of support here!

Morllyn profile image
Morllyn

Welcome to the group Vicky! Sorry about the diagnosis though.

I am from East Tennessee.

vicarder profile image
vicarder

Thank you all so much for your warm welcome. I live in Middle Tennessee. I am in my 50's and have no children. My husband and I live on my SSD. My vision has been affected by the MS, and I am unable to drive. I can definitely say that my cognitive abilities are more affected than my physical abilities.

mrsmike9 profile image
mrsmike9 in reply to vicarder

From one armpit place to another (I call Fort Wayne, IN the armpit of the US). I am like you with the cognitive issues being worse than physical. SO frustrating!!! Do you have a hobby? Sometimes that helps.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to vicarder

How are you doing today vicarder ? ☺ Have any good weather you can push up north? 😁😅

The more you post, the more we get to know you! 😊💕

J🌠

drnikki profile image
drnikki in reply to vicarder

Hi Vicarder...

sorry to hear about ur diagnosis but welcome. I am new to the group to. We are the same age but I was diagnosed at 27yrs old. I live in a small town outside of Rochester NY and I don't share my diagnosis with too many people. My advice stay as busy as you can and keep enjoying what you can. I say it a lot just remember MS is something you have not who you are...

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to drnikki

Where are you up by roch? drnikki do you go to Strong?

J🌠

drnikki profile image
drnikki in reply to Jesmcd2

yes I go to strong...i assume you live somewhere close by...

jimmpt profile image
jimmpt

Hi Vicky do not be scared we are all here to help. I have PPMS since I was 50 took 5 years for a proper diagnosis. Believe it or not after 5 specialist a chiropractor knew what it was and sent me to the right doctor. Keep your chin up, say your prayers and do not let it win

Sandi

janetb1968 profile image
janetb1968

Hello vicarder really nice to meet u from the UK no armpit of the South. More like small market town in the North of England 2 hours from Manchester and currently wide awake at 94:36 am drinking tea 😕😕😕😕. I was diagnosed with very active RRMS in December last year and I've just started Tysabri infusions every 4 weeks. Hugs to u hun try to keep active and don't let bloody MS win! 😁😁😁😁

cljones profile image
cljones

vicarder I to live in a pea picking little town in the south. Paragould, AR. Only town in the world by that name. This is the best place to get advice from those who know and understand. Family can't understand what you are going through. Those here do. I have more of the physical problems than the mental. Both can be equally frustrating. Hang in there and find a hobby or someone to help. I am involved in a jail ministry and that helps me feel better about myself. I feel I am accomplishing something. I also have a group of friends, with various health issues, that get together every Monday for brunch. It gives us an opportunity to solve the world's problems, as we say, or just our own. Keep your head up and keep fighting.

MsGelfling1 profile image
MsGelfling1

Vicky, you can't possibly live in the armpit of the south. I thought I did. Havelock, NC. What a place. Husbands usually change their tune with the wife gets sick. That part of love, cherish through sickness....that turns into a crock for a man.

vicarder profile image
vicarder in reply to MsGelfling1

He has been supportive in some ways, but others? grrrrrrr!

Doubled51 profile image
Doubled51

Y’all think those are bad. I used to live in Shakerag Ga.🤪😂🤣

Donnie

vicarder profile image
vicarder

I haven't gotten this website completely figured out yet! I am sorry it has taken so long to reply. My vision limits how much I can be on the computer. You guys are great! So do I keep talking to you guys here, or am I supposed to do something different?

BTW, I have an older medium sized dog (more on that later). This is one point of contention between hubby and I. He has never had a pet ( I am an animal freak). He's been around the dog 7 years and still does not like her.

I no longer work (disabled) but I trained to be an Occupational Therapy Assistant and worked in various clinical areas. I got burned out and did loan originating at an attorney's office. I also worked in mid-level management at a couple of factories. The thing I loved the most work-wise was founding and Executive Director of a large wildlife rehab center just outside of Nashville. waldenspuddle.org/

Vision getting tired...will try to be more consistent. I only use a desktop computer...

Hugs and Happy Easter weekend!

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