Progressive Forms of MS: Someone mentioned... - My MSAA Community

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Progressive Forms of MS

greaterexp profile image
6 Replies

Someone mentioned that there doesn't seem to be much information available for those with progressive forms of the disease. John at MSAA was kind enough to send these links. I hope they will help our SPMS and PPMS friends.

mymsaa.org/publications/und...

mymsaa.org/publications/ppm...

mymsaa.org/publications/mot...

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greaterexp profile image
greaterexp
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6 Replies

there are pages in facebook and some information on facebook if you do a search on these two forms of MS. Information is scarce however. Thanks for the links to information as I too have spms

johnMSAA profile image
johnMSAAPartner

Glad I could help, greaterexp :) Thank you for sharing those links.

- John, MSAA

rlh1974 profile image
rlh1974

greaterexp You always come through for us!!!!! You are a rock star!

jackiesj profile image
jackiesj

Greaterexp, ty for all your loving kindness and help.Sites are great.Hope you are doing well...

greaterexp profile image
greaterexp in reply to jackiesj

Thank you for asking jackiesj . We really do care about one another here, don’t we? What a blessing!

Fancy1959 profile image
Fancy1959

Greaterexp, it's Fancy1959. I believe there is information available about the progressive form of MS. I just simply think there was some interest in doing a ask me anything Forum about progressive MS in both of its forms. There's just something about talking to in medical professiona were they can explain things from different angles or in a better light than a typical book can. Fancy.

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