Happy Valentine's Day: Happy Valentine's... - My MSAA Community

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Happy Valentine's Day

Texandyroe profile image
23 Replies

Happy Valentine's Day everyone! This is my every day valentine. She and her granddad and I are starting a new "adventure" today, as her parents are out of town at a school music conference. We are having a QUADRUPLE sleepover! She is so excited and I try to act like I am, too. But the getting up before sunrise (about 4 hours before my normal get-up time) to get her fed, dressed and to school....then pick her up at 4 and take her to dance lessons til 8....when just doing on load of laundry a day or going grocery shopping with hubby wears me out for the next two days...not sure how I'm gonna make it 4 days...but with God's and hubbys help, I will!

We won't even talk about how I STILL haven't gotten a Tysabri infusion this year, due to my retirement system changing the insurance provider Jan 1. I THOUGHT I had all my ducks in a row in December, but...I honestly think it's the hospital slowing verything up. Insurance company has told me its all approved, drug company has said I'm on their "get it free" program, infusion center at the hospital says they keep trying to order he drug but it's not going through. i have put this in God's hands and know He will see me grow this...just hope its before another relapse.

Blessings to all, and wishing you all good health and happiness,

Sandy

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Texandyroe profile image
Texandyroe
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23 Replies
txcg152 profile image
txcg152

Happy Valentines to you too! I’m just guessing by your name, are you from Texas? I live in Georgetown, Texas

Texandyroe profile image
Texandyroe in reply to txcg152

Hi, txcg152 . Yes I live in Texas. Originally from Oklahoma, then bounced back and forth between Oklahoma City and St Louis until we settled in San Antonio in 1986. Moved to our current location - Edinburg, Texas 4 years ago

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

She is an Angel 😊 Good luck and lots of energy!😃

J 🌠

Kenu profile image
Kenu

Sorry to hear about Tysabri, seems funny it’s so hard for Hospital to get 🤷🏼‍♂️ I know that my insurance had to change it’s pharmacy three times to get Aubagio as it was hard to obtain also Hope you get it ASAP 👍prayers are with you 🙏🙏🐶🐕🐩🐾😉Ken

rlh1974 profile image
rlh1974

What a valentine indeed!!!! Sorry about the drug issue! We will all be praying for you!

janetb1968 profile image
janetb1968

Really hope u get the drug sorted soon im supposed to be starting it soon got to have my bloods taken on Monday xxx what a cutie pie bless her 😊😊😊😊

Texandyroe profile image
Texandyroe in reply to janetb1968

Thank you, janetb1968 . I have been on Tysabri for ove 4 years, and love it. No changes in my MRIs since I started taking it, which is a good thing!!! I'm sure you'll have as good an experience as me.

janetb1968 profile image
janetb1968 in reply to Texandyroe

Thank u I really hope so too. My MS nurse said it's one of the best DMTs available so worth a try xxxx 😊😊😊😊

greaterexp profile image
greaterexp

Was I ever that flexible? Wow! What a cutie!

I hope you can enjoy your time without overextending yourself too badly. You're in my prayers for getting your infusions resumed. Hang in there, and keep us posted.

Texandyroe profile image
Texandyroe in reply to greaterexp

Thanks, greaterexp ! Prayers always help. And I guarantee, I was never that flexible! Lol

janetb1968 profile image
janetb1968 in reply to Texandyroe

Awww I was when I was little did gymnastics but obviously not now l xxxxx 😊😊😊😊

pihokken profile image
pihokken

What a cutie! You will find the strength. And get lots of sleep when the parents get back. Hang in there.

Texandyroe profile image
Texandyroe in reply to pihokken

Thanks, pihokken ! I'm sure I will find the strength, but can promise you that when her parents get back, I'm going to do nothing but sleep and veg for the next week...

jimeka profile image
jimeka

Texandyroe what a beauty. Enjoy your 4 days with her, make the most of it, they grow up so fast. Blessings Jimeka 🦋 🤗

Texandyroe profile image
Texandyroe in reply to jimeka

Thanks, jimeka ! They DO grow up so quickly, which is why I agreed to this...even my son and daughter-in-law kept telling me that they were afraid it would be too much for me, and they COULD take her with them... I wouldn't think of it (how boring for her to sit through 4 days of presentations). I will persevere and it'll be awesome! I can rest when they get bwck

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Your Valentine is adorable, Sure hope the medication come through very soon.

Texandyroe profile image
Texandyroe in reply to CalfeeChick

Thanks, CalfeeChick - me too 😝

Doubled51 profile image
Doubled51

She’s beautiful. When it comes to grandkids we tend to find some extra strength. Somehow we are raising our 8 year old grandson. And my wife is homeschooling him this year.

Donnie

Texandyroe profile image
Texandyroe in reply to Doubled51

I know, Doubled51 - you are my inspiration- I tell myself hat if you guys can do it, so can I. And you're right,somehow we get energized when with e grandkids(s)!

Doubled51 profile image
Doubled51 in reply to Texandyroe

Inspiration I don’t know about but I can testify to the energized part.😁. They bring out strength that we didn’t dream we have. And ours is a great grandson and the last 2 days we’ve had our 18 month great grand daughter and she already in her terrible 2s.😜🤪😁😂❤️💕❤️. She’s truly a granddaddy’s girl. 💝. But jojos granddaddy’s boy also.😇❤️

Donnie

BigMar7 profile image
BigMar7

Sandy, your Valentine is beautiful and you are so lucky to have her for 4 days! Donnie is so right when he says, when it comes to grandkids we tend to have extra strength. You will do great and we will all be thinking of you❣️

kdali profile image
kdali

She's beautiful! 😍

Texandyroe profile image
Texandyroe in reply to kdali

Thank you, kdali I think so, but then again, I'm her grandma, so I may be a little biased 😝

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