One week later: Well it’s been a week and... - My MSAA Community

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One week later

Smartcloud1981 profile image
11 Replies

Well it’s been a week and half since my diagnosis. Will see my primary Tuesday just for a routine checkup Wants to see me because of the diagnosis. I will see the neurologist next month. I can not wait. Still feeling scared but I’m still going about my life. Working but making sure I take breaks. It’s going to be hard for me I’m use to working through my breaks but I know I can’t not. Trying to stay positive still. I’ve seen the bad side but I know the treatments are better then they use to be. Trying to figure out what’s a symptom and what is normal for me.

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Smartcloud1981 profile image
Smartcloud1981
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11 Replies
Morllyn profile image
Morllyn

Smartcloud1981 I know this is easy for me to say but, just go on with your normal life. Yes you should take care of yourself, take breaks when you need them, try to keep stress to a minimum, etc. but do not let it keep you from doing what you normally would. If you stop being you and do not do the things that make you happy then that adds stress to your life. Don’t be afraid. Whether you sit and do nothing, work in a garden, climb mountains or race cars MS will do what it is going to do, or not. Do what your doctor says and take care of your health but live your life. We know how bad MS can be, just look around, but we don’t know how bad it actually will be for you. Many people go through life with MS and do not have major disability so do not let the fear of what it can do keep you from enjoying life.

Smartcloud1981 profile image
Smartcloud1981 in reply to Morllyn

It’s like I’ve told everyone at work. I’m going to keep doing my job till I can’t anymore. I’m still living doing what I normally do just stopping sometimes to sit or rest.

Juleigh21 profile image
Juleigh21

You may want to keep a journal of your symptoms, time a day you feel them, how long they last, etc., and let the neurologist decide if it's MS or not. Maybe there's a pattern to the symptoms. Good luck to you! I hope this month goes fast.

Smartcloud1981 profile image
Smartcloud1981 in reply to Juleigh21

Started the journal once I was home from the hospital. The hospital has confirmed ms based on lesions on brain and neck. Blood work has been done to rule out other things. It’s the waiting that is getting to me. Thank you for the positive vibes. :)

Ambearholloway profile image
Ambearholloway in reply to Smartcloud1981

Wait time is the worse

Iona60 profile image
Iona60

Smartcloud1981 It took about 2 years after I was diagnosed for my system to adjust and for me to be able to tell what the new normal was.

Ambearholloway profile image
Ambearholloway

I'm wishing you the best in this new adventure. Give it time and you will be an expert at handling this.

erash profile image
erash

Smartcloud1981 its kind of what's the new normal and adapting to those changes rather than resisting or giving in to them is key. At least for me. Hang in there!

Midgey_Midge06 profile image
Midgey_Midge06 in reply to erash

So very true

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Smartcloud1981 honestly, what I suggest you do right now is take a breath, and adjust.💕 Its a roller coaster ride, no matter how you look at it. 😊

I'm sure you are being flooded with info now also!😄 Treatments are awesome for us now.😊 So I'm going to leave you with this to check out before your appt. mymsaa.org/publications/sea...

How to S.E.A.R.C.H.™ for the Right MS Therapy for You!

I hope that helps😊💕

Jes 🌠🎄

bxrmom profile image
bxrmom

Smartcloud1981 I know it's overwhelming to get the diagnosis, it was for me. I was in shock. Wait for all the tests to come back and go from there. Take your time on deciding what's best for you. There is so much out there to choose from now than there was when I and others before me were diagnosed. Keep doing you and take time to breath.

Jessie

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