Hello all and welcome to so many newcomers to this wonderful forum. Today is the 3 month mark of me being on Ocrevus. I am doing well. I have been quiet hereof lately and am probably overdue for an update on how things are going. I have been feeling a little better as to the severity of my exacerbations. Life isn't nearly as uncomfortable as has been for the past few years. Coupled with diet changes, mainly whole foods, low fat and sodium.oh and cant forget the choclate! 😂
One of the reasons I have been so quiet here as late is me adjusting to huge lifestyle changes. It is normal for my personality type to withdraw to adjust to big changes. As far as any ongoing side effects, really hadn't experienced anything out of the ordinary after the initial weakness passed a couple weeks after the second infusion. I am awaiting a date for my next infusion early November. It, so far, is the first dmt I have been able to tolerate.
As far as working towards getting myself out of a bluish state I have been stuck in since my DX in 2014 is working to overcome multiple sclerosis. I have been learning to play the harmonica. I am enjoying it. I am starting to hear the magical words from others "hey you getting pretty good at that" that in itself is a a beautiful thing to my ears. I may not hear all that well anymore but still enough to catch that. 😆 I found a video on YouTube. Of a woman playing an arrangement of Lenard Cohen's Hallelujah on the harmonica. I have been playing I second harmonica to that video. A I played it for some friends of mine a few weeks ago and they wished to record it. I am posting a link to my Google Drive file for anyone whom might be interested in watching me play it. It is a HD file so it takes a little bit to load.
This has been my focus for OMS! That and being able to share here and this forum.
Love and Prayers