Great news from cancer doc: I just got a... - My MSAA Community

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Great news from cancer doc

Amore55 profile image
39 Replies

I just got a call from the apron at the cancer doc I saw. She said all the tests they have run have come back normal. There is still one more, but she said they expect no problem with it. They think it was the tysabri causing the high lymphocytes. I am so relieved. And I thank you all for your support and prayers! Can't express my love and gratitude. We all have so much to be thankful for, in spite of difficulties. Happy holidays! Kelly

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Amore55 profile image
Amore55
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39 Replies
erash profile image
erash

Kelly so, so very glad!!! Now what happens with the Tysarbi?

Happy Thanksgiving!

Amore55 profile image
Amore55 in reply to erash

Erash, my neuro and I decided the PML risk was WAY too high, so I'm back on Copaxone. It is fine, I was on it years ago and feel very comfortable with it. Thanks for your kind words, really appreciate them. Happy Thanksgiving to you and your family! Xxx Kelly

erash profile image
erash in reply to Amore55

Ok, u had the painful copaxone shot the other day...i think. I need to keep a spread sheet like Tutu to keep track of everyone 🙄

Amore55 profile image
Amore55 in reply to erash

Erash, that's so funny. When I read that she does that, I started my own. There is a lot to keep track of, isn't there?lol

WAshingtongirl profile image
WAshingtongirl

So very happy for you, Kelly. You have One more reason to be thankful tomorrow!

Amore55 profile image
Amore55 in reply to WAshingtongirl

Tutu, thanks for your kind words. So much to be thankful for. Happy Thanksgiving to you and your family! Xxx kelly

jimeka profile image
jimeka in reply to Amore55

Oh Kelly I am so pleased, about time you had some good news. God answers prayer, blessings, and tomorrow you can really celebrate, hugs Jimeka

Amore55 profile image
Amore55 in reply to jimeka

Jimeka, thank you so much! I was so pleased. I have much to be thankful for, including my British friend! Xxx Kelly

Amore55 profile image
Amore55 in reply to jimeka

Jimeka, I was thinking of you on this holiday and want to thank you for your friendship. You are a gem! Have a good evening! Kelly xxx

jimeka profile image
jimeka in reply to Amore55

Hope you haven't eaten too much and you have saved enough for pumpkin 🎃 pie x

CalfeeChick profile image
CalfeeChickCommunityAmbassador

Wonderful!!

Amore55 profile image
Amore55 in reply to CalfeeChick

Thanks so much! Happy Thanksgiving to you and your family. X Kelly

dmaskal1 profile image
dmaskal1

Amore55, your news is wonderful!! I hope you enjoy a wonderful Thanksgiving! :)

Amore55 profile image
Amore55 in reply to dmaskal1

Thank you so much! Happy Thanksgiving to you and your family. Kelly

Judi4 profile image
Judi4

Glad to hear Kelly. Have a Happy Thanksgiving.🍂🍁🦃🍁🍂

Amore55 profile image
Amore55 in reply to Judi4

Judi, thanks for the kind words and support! Happy Thanksgiving! Kelly xx

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

That's awsome news Amore55 ! And such a relief off your mind. Welcome back to the world of copaxone hahaha

Have a great Turkey Day!

Amore55 profile image
Amore55 in reply to Jesmcd2

Hello Jes! Thanks for your support, I really appreciate it! Yes it's back on Copaxone, better than PML, huh? Happy Thanksgiving! Kelly xx

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to Amore55

Amore55 You are so not lying there! Hope you had a wonderful day yesterday!

Iona60 profile image
Iona60

Kelly,

I am so happy for you. God answers prayers! Glad you can go back on Copaxone. Peace and hope for you on Thanksgiving Day!

Amore55 profile image
Amore55 in reply to Iona60

Iona, yes He does answer them! Thank you for your support. Happy Thanksgiving to you and your family! Kelly xx

Eileeng profile image
Eileeng

Happy for you. 😀😀😀

Amore55 profile image
Amore55 in reply to Eileeng

Eileeng, thanks for your sweet words! Kelly xx

Karen-x profile image
Karen-x

Wahoo!!! 🎉

Amore55 profile image
Amore55 in reply to Karen-x

Thanks Karen! Appreciate it. Kelly xx

angelite profile image
angelite

Great update - so pleased to hear, Kelly. Enjoy your Thanksgiving. Angela x

Amore55 profile image
Amore55 in reply to angelite

Angela, thanks for your kind words. Happy Thanksgiving to you and your family. Kelly xx

greaterexp profile image
greaterexp

Hurrah! Hurrah! Hurrah!! Hallelujah!!!!!

Amore55 profile image
Amore55 in reply to greaterexp

Thank you so much for your prayers and support! Hope all is well with you. Kelly xx

greaterexp profile image
greaterexp in reply to Amore55

I'm so thrilled about your great new!

I felt nearly normal all day. It was so nice to feel well. Isn't it wonderful to have good news!?!

jimeka profile image
jimeka in reply to greaterexp

It's amazing how good news can make you feel on top of the world and you can forget all your problems and enjoy the moment. Blessings x

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply to jimeka

So very true jimeka :)

Bygonelines profile image
Bygonelines

Kelly - I am so happy for your good news! Copaxone isn't so bad. Though I wish I didn't have to take the shots. I am sure there was much "happy dancing" in your home on Thanksgiving.

Stay well my firend.

Jacqui

Amore55 profile image
Amore55 in reply to Bygonelines

Jacqui, how are you? I haven't heard from you for ages! How was your Thanksgiving? I hope you are feeling well. Yes, we were "dancing in the streets"! I would be lucky to walk sedately to the end of the block! Ha ha Yes the shots aren't a lot of fun, are they? They kind of make me feel dizzy and nauseous. Do they ever do that to you? I am thinking I just have to get used to them. Can you tell I missed you? Sorry about the long post. Hope to hear from you soon. Kelly xxx

Bygonelines profile image
Bygonelines in reply to Amore55

Kelly, I am fine. I have had my head buried in my website for almost 2 weeks now. I am trying to set it up on my own and am having issues. Several times I have come close to throwing the computer out the window! My brain is just not geared to work the way website building needs it to. I unfortunately don't have the money to pay someone to help me with it. Not too many people want to do website building in exchange for cookies and/or help with their genealogy/family history. Too many people have all the help they need here in Utah for obtaining cookies and genealogy help. LOL

I am determined that this will not beat me! Once it is all set up it will be all good and I will be able to keep it going.

The only time I have had an issue with the dizzy and nausea is when I hit a vein. Luckily that doesn't happen too often. I also have more issues if I use my arms and thighs so now I don't. I talked to my neuro and she said I could use my buttocks. I have enough fat on my body I can shoot up in a lot of spots but I just stick to my hips, belly, and butt.

You can call Shared Solutions and ask them to send Sara out to you. She is one of their wonderful nurses! She will come to your home and go over you injection technique and can answer a ton of questions. Are you using the autoject? I find I have fewer problems when I use it.

Our Thanksgiving was nice. It was just my husband and I. He decided he wanted to try Cornish Game Hens for dinner instead of Turkey. I think he thought it would be less work for me. It wasn't. They were good though. Stuffed the cavity with onion and herbs. Stuffed under the skin with a butter and herb mix and them covered them with strips of bacon and roasted them in the oven. YUM! Tender, juicy, delicious!

Sorry for the mini book I just wrote. As you can see I missed you as well.

Stay well my friend,

Jacqui

Amore55 profile image
Amore55 in reply to Bygonelines

Jacqui, thanks for the newsy post! I loved it. I'm curious, why are you building a web site? Are you starting a business? And 'be been meaning to ask you, what part of Salt Lake do you live in? I thought maybe one day we could meet, what do you think? Let me know. Kelly xx

Bygonelines profile image
Bygonelines in reply to Amore55

I am starting a blog and a business. The blog will be about living our best lives with MS. I plan on having a shop with items that are helpful for those of us with MS so that I can support the blog and maybe if I get lucky be able to supplement my income when I go on disability. I have big ideas and plans but getting that website set up is driving me nuts! lol

I live in the Jordan Meadows area of Salt Lake. 4th North Between Redwood Rd and I215. It is just outside of Rosepark. I would love to get together some evening or weekend.

Jacqui

Bygonelines profile image
Bygonelines in reply to Bygonelines

I sent you a message with my contact info.

Fancy1959 profile image
Fancy1959

Oh Amore55 that is such good news. Congratulations! We're glad you got extremely positive things and please keep us informed of the good as well as the bad. We can help don't hesitate to ask! Fancy1959.

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