New: Hi my name is Nicole I was diagnosed... - My MSAA Community

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Nicole-B profile image
12 Replies

Hi my name is Nicole I was diagnosed in 2012. I've been have a hard time lately my body is twitching all the time ! I've been sick with a cold I can't kick. It's hard to explain to my family that this affects my mental state. Thanks for letting me vent on my first post! Thank you for allowing me to join!

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Nicole-B profile image
Nicole-B
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12 Replies
1marybnlp68 profile image
1marybnlp68

Hi Nicole, my name is Mary & I was diagnosed in 2014. I have been having a rough time lately too. I've had a hard time explaining that high levels of stress only makes my condition worse, which really messes with my head & puts me into depression. Although I'm smiling & trying to be happy around everyone, the depression is still there. Whew!! Thank you for allowing me to vent in my first time here. I hope you can kick your cold soon & start feeling better, take care...

mayestas profile image
mayestas

That's one of the reasons we're here it's so that people can vent and ask questions because Only We Know what it's really like

SepFromWisco profile image
SepFromWisco

Getting sick with a viral infection can cause your old symptoms to flare up or what they call a pseudo-exacerbation. I too just caught a sinus infection after being outside all day a few days ago because of my excitement about the cooler weather! Did thoroughly enjoy the day, but now I am paying for it with the sickness and lots of numbness/tingling/weakness/fatigue/muscle spasms & twitching. Just trying my best to recover from the illness as soon as possible and hoping the other symptoms subside with it.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi Nicole-B and 1marybnlp68 welcome both of you and so happy you found us :) Wish it wasn't because of this monster they call MS. l personally call it something else lol. This chat has become an amazing resource for us, venting, friendships, support and more Venting lol l hope you both feel better very soon. I know how hard it to kick something with this monster kicking back.

johnMSAA profile image
johnMSAAPartner

Welcome to My MSAA Community, Nicole-B & 1marybnlp68 ! You've come to the right place if you just want somewhere to vent with others about your MS...OR if you're looking for feedback or inspiration from your peers. I'm happy to say that our online community is blossoming with all kinds of topics, thanks to people like you!

- John, MSAA

akfunguy profile image
akfunguy

Nicole, keep the faith and don't lose hope. Some days that's the best you can do is have faith that tomorrow will be a better day and then find a way to make it so.

cloudbear profile image
cloudbear

m.s. is a very lonely disease to those around you that are family and friends they dont understand what we have to go throough on a daily basis but now your in the right place we are a family here

Nicole-B profile image
Nicole-B

Thanks guys working full time and raising 4 kids is crazy for anyone with MS it's sometime impossible but with all your help I think I'll be able to deal better! You guys are heaven sent for me. Thank you again

Juleigh21 profile image
Juleigh21

Hi Nicole! Welcome! I'm sorry you have a cold. Infections always seem to aggravate the MS symptoms? Are you taking anything for the spasticity? A muscle relaxant like Baclofen or Tizanidine might get you through the rough patch. The worst thing your doc can say is no.

Nicole-B profile image
Nicole-B in reply to Juleigh21

True I go see her Tuesday I'll ask. Thanks

Fancy1959 profile image
Fancy1959

Nicole-B, hello it's Fancy1959. I am so glad that you have found this wonderful chat room. We offer many different ideas from different viewpoints. It is hopeful that some will assist you with ideas for problems you are currently experiencing. To most people a cold seems like a small thing. A bump in the road, maybe 5 or 6 days of being slightly under the weather and it's over.

When you are battling a chronic illness like MS, the smallest illness puts stress on the body that MS is not happy about. Then after MS becomes aggravated by the cold Lex becomes creative the twitching of your body. Now that you've got a cold that won't go away, your body is twitching all over, is it any wonder that your mental state slips and depression sets in. And you're not the only one that happens too. It hits almost all of us with MS at some point or another. We each have our triggers. So, go ahead and vent away. We have all been there!

So Nicole do as your mother always told you when you're sick. And now we're telling you. Take extra good care of yourself right now. Get lots of sleep and eat very healthy / mediterranean-style Foods. Lots of fruits and vegetables. Bring home some educational / reading material for your family. Information is their friend right now and yours as well. You couldn't even ask them to pose a question to this chat room in relation to your feeling bad or whatever you choose. We could respond and that way they could have different people viewpoints that currently have MS on the topic. It might be here real eye-opening experience for them. They might for once truly understand the depth that MS affects you is not something you're making up. It's something we all deal with on a day-to-day basis. Nicole I wish to invite you to become our newest MS Warrior. Remember together we are stronger! And as MS Warriors, we never give up and we never give in. We simply fight on MS Warrior, fight on!

agapepilgrim profile image
agapepilgrim

Nicole-B give them a book to read and tell them if you really love me and want to know what I go through every day, read this! My husband was shocked! And I read aloud from this chat room

And shock him some more!!

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