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Myfortic
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hematology oncology appointment tomorrow-stressed
They eventually pulled me off
Myfortic
. That caused my ongoing CMV issues to calm down and stabilize where they are today. However, my neutropenia persists. My neutrophils remain low. My lymphocytes remain high. I also continue to have mild anemia.
They eventually pulled me off
Myfortic
. That caused my ongoing CMV issues to calm down and stabilize where they are today. However, my neutropenia persists. My neutrophils remain low. My lymphocytes remain high. I also continue to have mild anemia.
Jayhawker
in
Kidney Transplant
2 months ago
CMV Update
Treatment plan for current CMV flare-up: Temporarily discontinue
Myfortic
Increase Prograf by .5 mg No antiviral medication (Valcyte) How has it gone?
Treatment plan for current CMV flare-up: Temporarily discontinue
Myfortic
Increase Prograf by .5 mg No antiviral medication (Valcyte) How has it gone?
Jayhawker
in
Kidney Transplant
5 months ago
Lightheadedness and Knee heaviness/dull pain after kidney transplant
He's taking Prograf and
Myfortic
. Does anyone have the same problem? What did you do to address those problems? Would highly appreciate your advise. Thank you!
He's taking Prograf and
Myfortic
. Does anyone have the same problem? What did you do to address those problems? Would highly appreciate your advise. Thank you!
Jeeeemv
in
Kidney Transplant
8 months ago
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Recurrent CMV Update
This specialist pulled me off Valcyte and
Myfortic
immediately and talked about using maribavir instead of Valcyte. (My nephrologist isn’t supportive of maribavir primarily because it’s a newer medication it seems.)
This specialist pulled me off Valcyte and
Myfortic
immediately and talked about using maribavir instead of Valcyte. (My nephrologist isn’t supportive of maribavir primarily because it’s a newer medication it seems.)
Jayhawker
in
Kidney Transplant
6 months ago
1 Year Anniversary (Nov 16)
I’ve been pulled off
Myfortic
. They have increased Prograf by .5mg daily. No antiviral medication. They are relying on my immune system to generate the specific T cells needed to respond to CMV. They’ve tested my T cell response rate.
I’ve been pulled off
Myfortic
. They have increased Prograf by .5mg daily. No antiviral medication. They are relying on my immune system to generate the specific T cells needed to respond to CMV. They’ve tested my T cell response rate.
Jayhawker
in
Kidney Dialysis
5 months ago
Appt with infectious disease specialist today: New CMV game plan
Suspend
Myfortic
for 4-6 weeks. That will elevate my WBC count more. Monitor renal function and CMV status weekly with treatment adjustments if needed. The goal is to give my body a chance to pull CMV in check using my own immune system. 2. If #1 doesn’t work restart antiviral medication.
Suspend
Myfortic
for 4-6 weeks. That will elevate my WBC count more. Monitor renal function and CMV status weekly with treatment adjustments if needed. The goal is to give my body a chance to pull CMV in check using my own immune system. 2. If #1 doesn’t work restart antiviral medication.
Jayhawker
in
Kidney Transplant
7 months ago
Anyone taking probiotics for diarrhea?
I'm on 2mg TAC BID, 2mg Sirolimus, and 360mg
Myfortic
BID. I've had a stool sample and a colonoscopy to ascertain the cause but no luck.
I'm on 2mg TAC BID, 2mg Sirolimus, and 360mg
Myfortic
BID. I've had a stool sample and a colonoscopy to ascertain the cause but no luck.
SoCal1
in
Kidney Transplant
11 months ago
Methotrexate for the summer
She said she totally understood my reticence to start
Myfortic
and given my recent bloods and how I have felt for the last month (ie more energy and stamina) she feels it best to see if the steroids will see it off altogether this time.
She said she totally understood my reticence to start
Myfortic
and given my recent bloods and how I have felt for the last month (ie more energy and stamina) she feels it best to see if the steroids will see it off altogether this time.
Spotty-ewe
in
LUPUS UK
10 months ago
WBC count very low & getting lower
However, my WBC count is now down to 1.4 They have tried decreasing the dose of
myfortic
and last week an infusion to bring my WBC count up. It went down after the infusion injection. Yesterday they called and told me not to take Val yet.
However, my WBC count is now down to 1.4 They have tried decreasing the dose of
myfortic
and last week an infusion to bring my WBC count up. It went down after the infusion injection. Yesterday they called and told me not to take Val yet.
Jayhawker
in
Kidney Transplant
1 year ago
Severe gastric problems- MMF?
My local nephrologist recently suggested I ask my team to switch me over to
Myfortic
. Has anyone here experienced such gastrointestinal symptoms?? What did you do to relieve them? If you are on
Myfortic
, is this medication easier on your stomach? Thank you for any suggestions.
My local nephrologist recently suggested I ask my team to switch me over to
Myfortic
. Has anyone here experienced such gastrointestinal symptoms?? What did you do to relieve them? If you are on
Myfortic
, is this medication easier on your stomach? Thank you for any suggestions.
6821green
in
Kidney Transplant
1 year ago
Protein in Urine
I received my transplant a little over three years ago, and am taking everolimus (a variant of sirolimus), prednisone and mycophenolic acid (
myfortic
). Recently my labs showed proteinuria (protein in the urine). I understand that this can indicate the beginning of organ failure.
I received my transplant a little over three years ago, and am taking everolimus (a variant of sirolimus), prednisone and mycophenolic acid (
myfortic
). Recently my labs showed proteinuria (protein in the urine). I understand that this can indicate the beginning of organ failure.
peregrin
in
Kidney Transplant
1 year ago
anyone living in Singapore/india post kidney transplant ?
I’m on belatacept and
Myfortic
currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there.
I’m on belatacept and
Myfortic
currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there.
Hidden
in
Kidney Transplant
2 years ago
Rejection and Covid 19
I am on
Myfortic
, Envarsus, Prednisone for Transplant.
I am on
Myfortic
, Envarsus, Prednisone for Transplant.
kuchera11
in
Kidney Transplant
2 years ago
Treatment on stage 5 ckd
Just entered the fifth stage with g f r - 15 creatine - 3 and I'm very scared one doctor suggested immuno suppressive drug named
myfortic
, And the other nephrologist said it is pointless at this stage and I really don't know what to do !? It has a lot of side effects especially at my age of 83.
Just entered the fifth stage with g f r - 15 creatine - 3 and I'm very scared one doctor suggested immuno suppressive drug named
myfortic
, And the other nephrologist said it is pointless at this stage and I really don't know what to do !? It has a lot of side effects especially at my age of 83.
Helenes
in
dRTA (distal Renal Tubular Acidosis)
2 years ago
Mycophenolate
After having really bad side effects from mycophenolate l am moving onto
myfortic
. I thought this was the same drug under a different name ? I have looked it up on the internet ,but it’s not very clear . Does any one know ? Thank you .
After having really bad side effects from mycophenolate l am moving onto
myfortic
. I thought this was the same drug under a different name ? I have looked it up on the internet ,but it’s not very clear . Does any one know ? Thank you .
artists
in
Vasculitis UK
2 years ago
Missed immunosuppressant dose
I was blessed with a kidney transplant 2 months ago, and for the first time forgot to take one of my 12hr doses of tacrolimus and
Myfortic
last night. I took my meds as usual this morning however. I'm terrified of an acute rejection episode. What is the likelyhood of something bad happening?
I was blessed with a kidney transplant 2 months ago, and for the first time forgot to take one of my 12hr doses of tacrolimus and
Myfortic
last night. I took my meds as usual this morning however. I'm terrified of an acute rejection episode. What is the likelyhood of something bad happening?
mikeeboy723
in
Kidney Transplant
3 years ago
3rd Vaccine shot
I am on tacrolimus and
myfortic
and took Pfizer for the 2 doses .
I am on tacrolimus and
myfortic
and took Pfizer for the 2 doses .
sujay1991
in
Kidney Transplant
3 years ago
Possible rejection
Just started a Prednisone recycle and a
Myfortic
increase to treat a possible rejection episode. If my labs aren't better on Monday I'll have to go for a kidney biopsy. Wish me luck.
Just started a Prednisone recycle and a
Myfortic
increase to treat a possible rejection episode. If my labs aren't better on Monday I'll have to go for a kidney biopsy. Wish me luck.
kimosabi1961
in
Kidney Transplant
3 years ago
Help! First time with active BK virus...
And, his plans down the road — depending on what the virus does — is to adjust my
Myfortic
somewhat as well and/or do an ultrasound. No plans at the moment to do a biopsy. As I said my numbers are almost baseline perfect.
And, his plans down the road — depending on what the virus does — is to adjust my
Myfortic
somewhat as well and/or do an ultrasound. No plans at the moment to do a biopsy. As I said my numbers are almost baseline perfect.
Hidden
in
Kidney Transplant
3 years ago
Upcoming transplant seeking advice
Pros/cons
Myfortic
vs. Cellcept? Also - anything you wish you'd known or done before, during and/or after transplant?
Pros/cons
Myfortic
vs. Cellcept? Also - anything you wish you'd known or done before, during and/or after transplant?
Bax509
in
Kidney Transplant
3 years ago
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