Erythema Multiforme

[DeeDee16900]

Does anyone have erythema multiforme? Think I've just had an outbreak of it. Not got much info on it though. Any info/ help would be good in case it happens again. xx

[Chezza1970]

Hi, the NHS believe I have this despite 2 biopsies saying it isn’t. I would be grateful of any replies also as the hospital are baffled. I’ve seen 4 consultants and a professor and they are all scratching their heads 3 years on. Nothing has been identified as a trigger but I haven’t had a flare up fingers crossed, since July. It isn’t stress related for me and no medication has been identified. Nothing prevents it and nothing helps it. It’s just 2 weeks of hell each time. I literally feel a tingle in my hand and within 2 hours start to erupt. Each time I have this it is more severe and it spreads further. I really hope you find an outcome. If you’re anything like me it takes 2 weeks of your life each time. At its worse it happens every 2-3 months but I haven’t had it for 5 months. Fingers crossed for you x

[DeeDee16900 in reply to Chezza1970]

Thank you, its not been confirmed 2 doctors saying it is and 2 saying its not. Whatever it is, its horrible, random areas of my skin itchy, red and raised alongside swelling. I really need to get it sorted, got enough to contend with. thank you for your reply xx

[Chezza1970 in reply to DeeDee16900]

Hi dee dee. Did you ever get a diagnosis? I'm still suffering and no outcome x

[Lotty1978 in reply to Chezza1970]

Hi I have just been diagnosed with this and I’m currently on acyclovir 800mg due to it being a reaction to HSV1 virus. Did you get treatment eventually? What was it please and the outcome..currently in hell with this 😭😭

[Chezza1970 in reply to Lotty1978]

Hi, me too. I'm still not convinced but won't know until next flare up. I was on the same medication before for 2 months and it happened again so they took me off it. Last flare up was 3 months ago and put back on it. Time will tell but I know how you feel, its horrendous and takes a week of your life! I know it's personal but do you get the same symptoms in another area? I was told there is no treatment and to hope meds keep it at bay.

Fingers crossed medication works for you x

[Lotty1978 in reply to Chezza1970]

Hi No I’ve not had it in any other area just my mouth and on face/ body, god i hope it doesn’t go anywhere else!

So was you on Acyclovir and it still flares up despite being on it?

Ive read about the different antivirals and wondering why they cant try you in them?

I hope you find something that works too x

[Chezza1970 in reply to Lotty1978]

I haven't had it on my face. Get it on both hands and fingers. Burns and large blisters on palms, in between, on top and underneath fingers, but not finger tips, left elbow, top of right leg and another area. It's very specific. Yes, but they felt with with another try with meds. I just cry when I feel the first tingle. Last time it literally came out within a couple of hours it was so fast.