Deep brain stimulation surgery: Hello is... - My OCD Community

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Deep brain stimulation surgery

MrsMapdog
MrsMapdog

Hello is anyone out there or knows of someone who has had (dbs)? I had the surgery on March 5th for my severe ocd. I have scrupulosity and symmetery/ orderliness ocd. I have seen some improvement after my surgery but am having still some anxiety and sticky thoughts. With time will that go away? Or am I expecting too much from the procedure? Thank you

11 Replies
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Are you still taking meds?

MrsMapdog
MrsMapdog in reply to Tinkering

Not on any SSRI meds. They never have helped me with ocd. Just buspirone and depakote

Tinkering
Tinkering in reply to MrsMapdog

Has the brain stimulation helped? Hope you are well. Ocd Is tough.

MrsMapdog
MrsMapdog in reply to Tinkering

I have seen some improvement. I really was bad prior to surgery.

With this covid 19 going on the psychiatrist I was referred is not having patients come into the office. I don't know if more tweaking with the program will make more of a difference. I hate this disease! It is so misunderstood.

Tinkering
Tinkering in reply to MrsMapdog

Yes. Wouldn’t wish ocd on my worst enemy. How long has it been since the surgery? Isolation and this pandemic is probably not making it easy.

MrsMapdog
MrsMapdog in reply to Tinkering

I got the surgery March 5th. I dont know if this pandemic was not going on would make a difference. It's like your mind is like a record playing and it just goes round and round.

I do have a zoom computer conference at the end of this month with the dr here for the first time. I have to tell her I have been having pressure in my left ear since we got home from out of state for the procedure. This disease can make life so unenjoyable at times.

How long have you suffered with ocd? I've had it since a child and during stressful times it really flared up. In 1997 I had a severe bout with depression which caused the ocd to be elevated and at the time I was finally diagnosed with the disease.

Tinkering
Tinkering in reply to MrsMapdog

I know the feeling. I have had about 26 years. It started after I had an allergic reaction to medication. I woke up one day and started to think everything was dirty and I didn’t know why. I diagnosed about 5 years later. I take lexapro but it isn’t a cure.

MrsMapdog
MrsMapdog in reply to Tinkering

I'm 55 now so it's been a long time for me. I've been on too many meds to name and none have helped. I believe I have resistant treatment ocd. I had tms (transcranial magnetic stimulation) prior to surgery and it didn't do anything. That is why we (my husband and I) felt we had to try the surgery.

Tinkering
Tinkering in reply to MrsMapdog

Yeah. I am sorry. It is a nightmare of a disorder. It is hard to treat.

MrsMapdog
MrsMapdog in reply to Tinkering

I'm sorry to hear about your struggle. Has this pandemic made things worse for you?

Tinkering
Tinkering in reply to MrsMapdog

Not so much. Mine is based on chemicals. It hasn’t helped but thankfully it’s not germs. It is just a nagging an everyday battle.

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