MSA meeting

[Rankin63]

Went to the MSA meeting at Inverurie yesterday and found it most beneficial. Topics covered were how MSA affects different people, indigestion, ways to get up after a fall,swallowing and advice about standing from a seated position. I still don't feel illness is progressing too quickly for me and hope this continues to be the way.

[FredaE]

Glad to hear you are not making much progress!!!!. That sounds an interesting meeting. Do you have many members in reach of Inverurie?

[Rankin63 in reply to FredaE]

Thanks for your reply . There were 9 people there including 5 patients which is the most so far. Long may it continue.

[FredaE in reply to Rankin63]

That's good. This is what it means to be a rare disease. When we used to go the the Parkinson'smeetings in Watford there were sometimes over a hundred.. We soon found that we didn'y belong there as they were all getting excited about deep brain implants which are only possible if you know exactly where to put them which Pd people do and we don't

Take care Freda

[Rankin63 in reply to FredaE]

Thanks again for your reply Fred.

The powers that be continue to link Parkinsons to our illness and I don't think it very helpful.

[lesp53]

My husband came with me to the Inverurie meeting; it was the first time that he had really met anyone else with the condition. He was very impressed with the specialist nurse's knowledge and I feel that he learned a lot.

When discussing it later with my daughter, she has said that she wants to come with me next time!! I think it is good that she has the opportunity to find out about the wider aspects of this condition, and those who are affected.

[Rankin63 in reply to lesp53]

Good news about your daughter. I'm sure that she would enjoy the meeting. It almost makes you feel human again and not someone with a progressive illness. We are,after all, ordinary people. Mina x

[Yanno]

Hello Mina. It’s great to hear that you are coping well - enjoy every day and keep positive, that’s what we try to do. It sounds as if you had a good meeting with some very interesting topics. Take care, Ian

[Rankin63]

Thanks for your reply ,Ian.

As I said, I'm fine apart from my balance which I try to ignore, and I try to live each day as it comes .The weather has been great and I have been able to get out to the garden.