Abdominal binders: I have started this... - Multiple System A...

Multiple System Atrophy Trust

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Abdominal binders

JillMSA profile image
JillMSAModeratorStaff
9 Replies

I have started this post so people can post any experiences people have had of using abdominal binders to manage postural hypotension please.

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JillMSA
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9 Replies
Diane831 profile image
Diane831

Hi llij. nice to meet you. Sadly I have no experience of abdominal binders and up tim just the last 2 weeks the postural Hypotension hasn't been much of an issue but I will be interested to see if anyone else replies with experiences.

Best wishes, Diane

Yanno profile image
Yanno

Hello IIij, welcome to our community, hopefully you will find it very supportive. We have no experience of postural hypotension but hopefully someone else has. Take care, Ian

Yanno profile image
Yanno

Hello again IIij,

I forgot when I placed my earlier post that at our last MSA Worcestershire Support Group meeting our MSA Trust specialist nurse, Jill Lyons demonstrated a new style abdominal binder. Have you spoken to the Trust or one of their nurses?

Ian

2georgepheobe profile image
2georgepheobe

Hi I have no idea what a abdominal binder is could you explain what it is please.pauline

Yanno profile image
Yanno

Hello Pauline. I'm no expert but I found this on the internet..."Orthostatic hypotension is an abnormal drop in blood pressure when standing from a seated or lying down position ... An Abdominal compression – Wearing an abdominal binder helps to decrease orthostatic hypotension."

Take care, Ian

Klk4475 profile image
Klk4475 in reply to Yanno

Hi this is Kelly and my Mom has these episodes mainly in the mornings when I get her out of bed and onto her potty. The episode looks just like she is possessed and is pretty scary. I have gotten so use to them by now.

Janeyl profile image
Janeyl

We tried three different types, but were never able to find one that Chris found comfortable and that didn’t ride up /down.

Chris6255 profile image
Chris6255

Hi I have severe postural hypotension. Took part in some research which looked at effects of drinking 900mls water or using binder on postural hypotension. Personally increasing the fluid helped me. Though I still get dizzy I haven’t passed out for 4 months as I drink water before I get up on a morning. Research result will be out in July,I think.

JillMSA profile image
JillMSAModeratorStaff

Dear Chris , would be really interested to know more about the research you were involved in are you based in the UK?

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