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I need answers! Can anyone help?

Jmariex33 profile image
3 Replies

This is going to be a long one so if anyone can get through it and offer some advice thankyou in advance! Injanuary 2018 i ended up having a migraine for around 5 days. With the migraine i also had light sensitivity and flashing lights, exaustion and weakness to the point where i couldnt even raise my arms. Finally the migraine went away and i thought it was over but the worst was yet to come. For around two months after this other things started to happen. i started getting numbness and pins and needles in my arms and legs, vibrating sensation in my spine, more weakness, more exhaustion, a twitchy eye, my sciatica worsend (which i was alredy diagnosed of, i struggled to walk in a straight line and blurred vision in one eye. i also couldnt seem to speak properly, i was stuttering a lot! (i dont think i had ever stuttered in my life before this!).

anyway i was referred to a neurologist as the doctor suspected it may be MS. the neurologist sent me for a brain scan which i didnt get till months after the symptoms stopped. it came back fine. anyway i was still having some symptoms through the time since then such as the twitchy eye, vibrating sensation in spine, pins and needles and migraines... ive also had allot of pains in my wrist. so my neurologist reffered me for some tests and i do have carpel tunnel but it isnt bad enough (at the moment) for him to concider doing anything about it. i have also recently been diagnosed with Trigeminal Neuralgia which is the worst most painful thing imaginable!

anyway on the 3rd of this month i had another migraine and it didnt go away till the 17th! after 14 days of going through a constant migraine it finally went away... then monday night i was hit with the worst migraine ive ever had! i was having flashing lights, sensitivity to lights, hurt when i closed my eyes, hurt when i opened my eyes, shaking, weakness, sickness, exhaustion. it lasted around 4-5 hours this time. It was exactly the feeling i had when it all started back in 2018. And sure enough ive been having pins and needles in my fingers and leg, exhaustion, stuttering again, worsened sciatica and worst of all i still feel extremely sick from the migraine i had on monday!

i just need someone to help! i dont feel like any of my doctors are doing anything and im starting to feel soo alone with this

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Jmariex33
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If it was ms you would have had brain scaring which would show on MRI regardless of whether you were still having symptoms .

I have the exact same symptoms as you! I’m under investigation with neurology and rheumatology. I’m due my MRI in 3 weeks but rheumatology haven’t ruled out a possible connection tissue disease. Do you also suffer with fatigue?

Orchid5555 profile image
Orchid5555

I had similar symptoms to you - after several weeks of migraines which I had never had before, I went and had my eyes tested - that was then they identified optic neuritis. This was the beginning of the doctors suspecting MS which was diagnosed in subsequent years. Regarding the migraines, after many months of daily migraines (and an unsuccessful trial of Topomax), I had immediate relief with a low dose of Amitriptyline (10 mg), which I continue to take daily. When you say you had a brain scan, was this an MRI? If so, and it came back clear, this is a positive sign. I know this is many months since your post, so I hope you have found some answers and some relief. All the best to you.

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