Hi Everyone, I have just found out I have very e... - MPN Voice

MPN Voice

10,431 members14,374 posts

Hi Everyone, I have just found out I have very elevated liver enzymes (ATL) 100,

Marie95 profile image
2 Replies

am on Interferon alpha (or was) hem sending me for an ultrasound scan this week, it hasn't been raised prevously, have bee n taking IFN for around 5 months, but recently many problems have occured with it , rashes on legs, confusion, and anxiety, hairloss. Has this happened to anyone else Re; the liver problems, and if so what can be done to lower it? Any info at all would be greatly appreciated as I am feeling very strange with it.

Written by
Marie95 profile image
Marie95
To view profiles and participate in discussions please or .
Read more about...
2 Replies
ETphonehome profile image
ETphonehome

I had periodic elevated Liver enzymes on IFN too, apparently it is a very common side effect of the drug. When it happened I would either reduce or miss dose until counts recovered. The same thing can happen to your WBC's(Neutropenia) when taking either of the IFN's.

Marie95 profile image
Marie95

I was so relieved to read your post, (Doc was having none of it, having anything to do with the INF) at least I now know its a possibility, as the other options aren't as welcoming, cheers ETphonehome

You may also like...

Just found out I have pv

and have 3 fantastic children my partner is as confused as I am . This has all come about from a...

38 and just found out I am JAK2+

marrow sample taken on Tuesday and I'm having anxiety about the procedure. What will this tell the...

Just getting used to finding out that I have ET, now also have early mylofibrosis

Hi I am new and have been diagnosed with ET Jak2

Hi everyone. Just joined and hoping to find support in the PV world!