MPN Voice Vlogcasts – In Conversation With… a series of monthly informal conversations with members of the MPN community with Nona co-chair of MPN Voice and a MPN patient herself. The vlogcasts can be viewed on the MPN Voice YouTube channel. youtube.com/channel/UC-S_Ic...
The seventh vlogcast in the series is – In Conversation With … Louise Broughton, who talks to Nona about how her PV was diagnosed in 2009 after she had been experiencing symptoms for a number of years, and how she now manages these symptoms, and her top tip for dealing with the ‘itching’ - aquagenic pruritus. They then talk about the buddy support program and why Louise became a buddy, she has been a MPN Voice ‘buddy’ for a number of years and has given support and advice to over 38 people, she says “it is important to have someone to talk to who understands how you are feeling, particularly when you don’t know anyone else who has PV.”
We would like to thank Louise for taking part in this conversation with Nona. If you would like to have a buddy for some help and support, or would like to become a buddy to help other people with MPNs, please email buddies@mpnvoice.org.uk for more information.
We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk. If you have any suggestions for future conversations please let us know.
