I was checking through posts and answers to them a couple of weeks ago and found someone who had replied to another newbie on the site and so much of what this person said, made sense to me. I would like to revisit this post and perhaps take advantage of the offer of a chat given by the woman who wrote - going so far as to offer her phone number. (Sadly the number wasn't recognised when I plucked up courage to ring so I haven't managed to speak to her.) She spoke of being a Buddy to 23 newly diagnosed people that she was looking after. I did cut and paste some of her post and paste it here in case it is recognised:
"I was diagnosed at 54 with a haematocrit of 74, exhausted, horrible thick foggy head, ( the most ghastly itch called aquagenic pruritis , do you have that?) now nearly 64, I’m absolutely FINE and have been for 7 years nearly.
I climb fells, run a holiday property, cook supper for 12 you name it and now buddy 23 lovely people just like you, newly diagnosed, and wondering what the hell is going on!"
If you recognise this as being part of your post that day PLEASE could you get in touch and let me know if it would be possible to have a chat?? I would be very happy to hear from you. Thank you.