I haven't written in awhile : I have been on here... - MPN Voice

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I haven't written in awhile

Wilma66 profile image
27 Replies

I have been on here in awhile. I do get on the forum often.

I was diagnosed in 2013 with ET and Jake positive. I started aspirin and not long after that Hydrea. I'm not having any issues with Hydrea, just don't like taking it.

I started having issues with with my colon. Two weeks ago I had to have surgery for severe diverticulitis. I've been through alot with this miserable stuff. I had 12 inches of colon out and abscess. With prefermation, I am on the mend and doing good. I know it will be a long road.

Has anyone here on the formun had this problem before?

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Wilma66 profile image
Wilma66
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27 Replies
JojoWonder profile image
JojoWonder

I’m sorry, I don’t have an insight to your experience. I just wanted to say get well soon. It sounds like you’ve been through the mill 😔 Sending love 💗

Wilma66 profile image
Wilma66 in reply to JojoWonder

Thank you so much ❤

How awful for you. Hope you make a good recovery.

Wilma66 profile image
Wilma66 in reply to

Thank you 🧡

Bridie123 profile image
Bridie123

Oh you poor love, I hope your pain and discomfort rapidly ease soon. 💐

Wilma66 profile image
Wilma66 in reply to Bridie123

Thank you 🧡

JediReject profile image
JediReject

Hi Wilma , , just to wish you a speedy recovery and pleased your surgery went well, , I hope this radical intervention means you can get your life back on track pain free given time to heal.

Luckily for me I have no experience of intestinal or bowel problems but when you informed us of your upcoming surgery a couple of months back a few others here had so maybe they will chip in.

Good luck going forward.

Chris

Wilma66 profile image
Wilma66 in reply to JediReject

Thank you Chris!

Mazcd profile image
MazcdPartnerMPNVoice

hello Wilma66, I do am pleased that you are on the mend and doing well, I hope you continue to recover well from your operation. Wishing you all the best, Maz x x

Wilma66 profile image
Wilma66 in reply to Mazcd

Thank you!!

SusieG60 profile image
SusieG60

Hi Wilma66. Im also Et jak2. Take hyrea a d aspirin. Im 61. Last year i had my first sever flare up of Diverticulitis. It was bought on by sever food poisoning. I was in hospital for a couple of weeks but extremely ill for a couple of months. I still havnt gained the weight i lost at that time. I never had surgery but am wishing you well. I suffer on and off with slight flare ups now. Xx

Wilma66 profile image
Wilma66 in reply to SusieG60

Thank you and please take care ❣

Wilma66 profile image
Wilma66 in reply to SusieG60

I'm so sorry to hear about your experience with diverticulitis. It can be very intense. I hope you are doing better and continue to heal ❤

Wyebird profile image
Wyebird

Wishing you a speedy recovery c

Wilma66 profile image
Wilma66 in reply to Wyebird

Thank you

Cja1956 profile image
Cja1956

Hi, Wilma, sorry to hear of your ordeal. It sounds awful. I have Post Et Mf, also Jak 2 positive. I was diagnosed with IBS a few years ago, but instead of taking medicine, I changed my diet completely, and went off sugar, dairy, and gluten. My problem cleared up. I’m now on a regular diet, but my yen for sugar went away, and if I eat too much starch, I get a stomach ache. . I would talk to a nutritionist and find out what you should be eating for the future.I hope you continue to heal and I wish you a complete recovery.

Wilma66 profile image
Wilma66 in reply to Cja1956

Thank you so much for your input. I appreciate you 😊

Wilma66 profile image
Wilma66 in reply to Cja1956

Thank you so much for your input❣

Scottishterrier profile image
Scottishterrier

Hi Wilma I have been on hydrea for many years due to finding out I had a blood clots to the liver and put under the care of a consultant gastrointestinal Dr my heamatoligst gave me a list of treatments hydrea being one of them which I opted for they do make you tired but my consultant says if I could have a nap in the afternoon and felt a bit nauseated but my gastrointestinal consultant put me on domperidone and I have never looked back and that has been many years I have been on hydrea yes I have other ailments but the hydrea keeps my platelets well under control so keep going with itYou stay safe

Best wishes

Scottish Terrier xx

Wilma66 profile image
Wilma66 in reply to Scottishterrier

Thank you so much for your input. I do appreciate you 😊

Scottishterrier profile image
Scottishterrier in reply to Wilma66

Any other information just let me know was in late twenties when diagnosed with et jack 2+and now hyperthyroidism and ibs but always happy maz and your selfStay safe

Scottish Terrier xx

Wilma66 profile image
Wilma66 in reply to Scottishterrier

I too have hypothyroidism, since 2002. Had cancer on thyroid

azaelea profile image
azaelea

So glad to hear you’ve had your surgery which sounds very unpleasant. Hoping you are feeling a bit better each day and will soon make a good recovery and be free of the dreaded diverticulitis. 🙏🙏Fran xx

Wilma66 profile image
Wilma66 in reply to azaelea

Thank you Fran!! I'm improving each day.

azaelea profile image
azaelea in reply to Wilma66

xx❤️

Wilma66 profile image
Wilma66 in reply to azaelea

Thank you

mhos61 profile image
mhos61

Hi Wilma, wishing you well in your recovery. I hope this intervention brings you much relief and improves your quality of life.Xx😘

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