Et and pins and needles

[Irishgal12]

Does anyone ever get pins and needles in legs or arms at night. Am starting to worry it means my blood isn't flowing and it will clot

[Johan2021]

Hi! I belive it is a common symptom when you have mpn. Are you diagnosed? Are you on aspirin?

[Irishgal12 in reply to Johan2021]

Yes et aspirin only Do u know why we have it

[Johan2021 in reply to Irishgal12]

Probably because of the circulation/platelets. It is common.

[Flimmeri in reply to Irishgal12]

Hi there! I have Polycythemia Jack2 negative. Have had this for 14 years. My arms, hands and feet go numb with pins and needles a lot. Of course it happens at night quite a bit, since not moving a lot. Even sitting cross-legged for a while or driving long distance keeping your hands on the steering wheel and not moving, I will go numb with pins and needles. This always gets worse closer to my phlebotomy.

Glad to hear I am not alone with this.

[elliebongo]

Hi, I sometimes have these symptoms. If you get them regularly contact your haematologist and mention symptoms to them. Stay safe.

Rose

[Irishgal12 in reply to elliebongo]

I get them periodically

[linphy]

Morning yes occasionally I have pins and needles in my hands and legs

[Jody00]

Hi yes I get pins and needles all time in my feet mainly and sometimes in my hands xxx

[Irishgal12]

Is there anything that helps

[Jody00]

I get mine at night times when am sitting down more or laying down a can feel pins needles alot in my feet but only feel in my hands sometimes I just circle my feet around when am sat down to see if helps and I have a little walk around but soon has i sit down comes back in again think its due to condition we have got but many on here have help out with alot of questions and answers know better than what I do but am learning Xxx

[Trueblue8]

Hi, I'm ET JAK 2 pos on hydroxycarbamide and aspirin. I get pins and needles in my hands quite regularly, particularly when lying down. Also, in particularly cold weather the tips of my fingers get very cold, which can be quite painful. I've always just assumed that this is all down to poor circulation. Best wishes

Ian

[MaggieSylvie]

Hi Irishgall, We are on aspirin so I don't think getting pins and needles is anything to worry about. I get it in my right arm some nights and have to just move it. I get cramp in my legs. It's just a pity that I don't get a lot of sleep for various reasons - pain is only one of them.