Blood tests high platelets

[Irishgal12]

So me again

I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal

[clubdino]

Yes. I was also tested for CML in the beginning. That's your doctor being very thorough. Completely normal.

[Irishgal12 in reply to clubdino]

Am so worried I wondered if they suspect it and that's why they are testing. They are testing for essential thrombocytosis too which I never thought they would do so soon and iron tests but not repeating cbc or platelets strangely

[clubdino in reply to Irishgal12]

If you don't have a high white blood cell count then it's very unlikely that you would have cml. I specifically remember my doctor writing in my report that he was not very concerned that I had CML but he was going to do the test just to rule it out. (I had a high WBC.) Your doctor has to rule out other blood cancers before specifically diagnosing you with ET. I think it's a good thing that your doctor is testing you for ET right off the bat instead of waiting for iron studies to come back. If you were iron deficient there would be clues in your CBC that your doctor knows to look for...such as the size of your red blood cells. Red blood cells get smaller with iron deficiency.

[Irishgal12 in reply to clubdino]

I see as far as am aware cbc was ok. But someone told me my iron stores could be low when hb ok

[clubdino in reply to Irishgal12]

It is true that you can be iron deficient without anemia. But, on your CBC results if you look where it says MCV... if that number is normal than iron deficiency may not be likely. If the MCV is low it means your red blood cells are small and can signify iron deficiency.

[Irishgal12 in reply to clubdino]

Ok am not sure what it was looks like am heading for et

[Mwalimu in reply to Irishgal12]

I feel that, if it turns out to be ET, you're probably fortunate …. so many of us manage very well with it. Anyway,try not to worry too much ……. and try to keep positive for the New Year. It's a new beginning for you, not an end. Sallie

[Anag in reply to Mwalimu]

Yes. No matter what, it’s good to know and then you deal with it, just like we do! Have a great celebration and write us. 🙂 🥳

[Irishgal12 in reply to Anag]

I hope I can why am I so convinced its et

[Wyebird in reply to Irishgal12]

If they are testing for ET that’s ok. That happened to me. They will be testing to see if you have a mutated gene.

[Irishgal12 in reply to Wyebird]

Yes but I was hoping it would be reactive they are also testing for cml

[Wyebird in reply to Irishgal12]

It’s a difficult time for you. Sending you lots of hugs. Xx

[Irishgal12 in reply to Wyebird]

Thank you. My wbc normal so not sure why they testing for cml

[Irishgal12 in reply to Wyebird]

Do u know if pregnancy can happen in et

[Wyebird in reply to Irishgal12]

Yes it can definitely happen. You must discuss with your heamo and make a plan. I think you will be put in different meds.

[Mazcd Partner MPNVoice in reply to Irishgal12]

Yes, please read this information on our website

mpnvoice.org.uk/living-with...