Some Good News!!!: Hi Everyone! Today i had... - MPN Voice

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Some Good News!!!

Vigiindia profile image
25 Replies

Hi Everyone!

Today i had appointment with my hematologist and i just received a word from my doctor saying that "Its impossible that u have PV" the CBC reports is beautyful."

My RBC is 4.68(lab range 4.7 to 6.5)

HB=14. 6

And PCV=42.7

As my values are dropping down since phlebo 2.5 months before.

Wbc is slightly high but doctor said dont worry.its bcs of flue!

And most important doctor stoped my Aspirin 75mg from today on words.

Doctor still monitor me another couple of months and suggest that keep stopping smoking and drinking alcohol bcs my blood is recover very well after stopping my all habits.

Something for cheers!

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Vigiindia profile image
Vigiindia
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25 Replies
Rachelthepotter profile image
Rachelthepotter

That's brilliant news. Keep up the good work.

Rachel

Vigiindia profile image
Vigiindia in reply to Rachelthepotter

Thanks Rachel!

Yes its really brilliant am quite happy,my hematologist said that its bcs of excess alcohol and moderate smoking.Alcohol can increase body iron level and cause excess hemoglobin And High MCV and also RBC s. Since am stopping it completely the blood starting recovering

I never start alcohol again!

Anneian profile image
Anneian in reply to Vigiindia

I didn’t know that alcohol affected your bone marrow. I have been having 1-2 vodka and cokes a night so am now wondering whether that could have had an affect on me.

Tico profile image
Tico in reply to Anneian

Hi Anneian, it is binge drinking that can have an effect on your mean corpuscular volume,(Mcv's) which count and measure the number of your red blood cells. Their are also a number of other things like lack of B12 and medication, particularly chemo drugs with hydrea being top of the list. Best wishes tina.x🤗

Vigiindia profile image
Vigiindia in reply to Anneian

Hi Anneian,

I think MCV and MCH can rise in heavy alcohol,my both counts were high.RBC no.s slightly elevated but HB is 20.7.

HB is an multiplication of RBC s and MCH so if ur MCH rises then HB too.

I dont know what really happened to me but quitting alcohol and smoking give me a good results.

I dont know what happened in future but currently its good.

And also please note that alcohol can have direct toxic effect on bone marrow... My doctor said

Good luck!

Jmp89 profile image
Jmp89

awesome!!!

Mazcd profile image
MazcdPartnerMPNVoice

Hi Vigiindia, that is brilliant news, I am so pleased for you, now you can make the changes necessary, and get well and enjoy your life. Best wishes, Maz

Vigiindia profile image
Vigiindia in reply to Mazcd

Thanks Maz!

Tico profile image
Tico in reply to Vigiindia

So pleased for you vigiindia, it must be a relief for you. Have you been discharged from haematology now? All the very best to you vigiindia, i know this had caused you a lot of worry.tina.x🤗

Vigiindia profile image
Vigiindia in reply to Tico

Thanks Tico!

No not completely. My doctor still monitor me couple of months to see the counts but he is pretty much sure that nothing wrong with me.

My HB and MCV and PCV were high from 2014 which had never cause any symptoms.My rbc start rising since last year but quite stable

MichaelS profile image
MichaelS

That is very good news. Just knowing that will make you feel much better and don't be afraid to have the occasional alcoholic drink from time to time, if you can control your intake, but please keep off smoking.

Best wishes for a long and happier future

Vigiindia profile image
Vigiindia in reply to MichaelS

Thanks Michael

Yes occasional drinks are okay said my hematologist but not so often, bcs alcohol have an more toxic effect on my bone marrow, am quite happy that is reversible after quitting.

An another part smoking is worse!

Aime profile image
Aime

That’s great. Well done. Kindest regards Aime xx😺😺

Vigiindia profile image
Vigiindia in reply to Aime

Thanks Aime

Hope that i just keeping good in future also, u still feel some mild MPN symptoms like headache or some shortness of breath but doctor said dont worry its probably due to Initial phlebotomy s

Ebot profile image
Ebot

Great news. Wishing you all the very best.

Wyebird profile image
Wyebird

Bril news

azaelea profile image
azaelea

Great news! So pleased for you! Fran

redumbrella profile image
redumbrella

Great news for you hope that you keep well

Garry

Fifty2018 profile image
Fifty2018

Vigiindia:

I hope that is good news for you. It should be good news if all numbers are normal and beautiful. But I am really worried about your low MCV, as well as mine.

A MCV number measures the average size of the red blood cell, a normal range is 80 to 98. When I was first diagnosed with PV, my MCV was 87.5. And now after 7 phlebotomy and then 5 months without phlebotomy, my most recent MCV is 60. I think that is way too low, suggesting my body is not producing normal and healthy red blood cell. I am really worried that my PV has turned into MF, Myelofibrosis.

But your MCV of 42.7 is even lower than mine!!! Do you feel fatique often during the day? Your blood stream would not carry enough oxygen with that low of a MCV reading.

Vigiindia profile image
Vigiindia in reply to Fifty2018

ThanksFifty2018 for ur wishes,

Sorry for my mistake and i corrected it!

My PCV is 42 not MCV

My MCV was 105 when am diagnosed

And dropping down since quitting alcohol and cigarette s now my MCV is 94

Stateofmine profile image
Stateofmine

Oh my gosh congratulations. God bless you

Selvamok profile image
Selvamok

God bless you. I am also going to stop alcohol. Iam also experienced, my MCV also going from 87 to 90 to 93 when I cross 200 ml alcohol.

Let me know your hematologist ? . I am also India having high PCV.

Vigiindia profile image
Vigiindia in reply to Selvamok

Hi

Am from Nashik Maharashtra

You can talk with me anytime please give ur cell No. My hematologist also practices in banglore

Vigiindia profile image
Vigiindia in reply to Selvamok

Am going through ur profile if u drink daily alcohol and crosses limits then its aways raised the concern of high MCV and MCH

After stopping it completely i have good results

kavin2019 profile image
kavin2019

Good luck.

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