PV stinging itch and Ruxolitinib : Hi all I really... - MPN Voice

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PV stinging itch and Ruxolitinib

Hi all

I really can’t wait to share how Rux has changed by daily life in less than a week.

I was approved for Ruxolitinib and started taking it a week ago. I feel fantastic - the itch has gone. I am generally warmer - what a wonder this is. I will have my bloods done on 5th and just hope they are ok as HU did control them very well. I am not guarantee to always be given them but for now I am so grateful.

The same day my first granddaughter was born

My best wishes to you all.

I have found a real comfort in reading all your daily posts

Anna 😃 x

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Hi anna, what a beautiful picture of your first grandaughter,reminding me when my second grandchild also a girl was recently born in september. Good news about the effects the ruxo is having on you in such a short period. Long may it continue. Atb, tina.🤗

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Anna, what a beautiful baby she is. Good to hear that Ruxolitinib is working for you long may it last.

Jean x

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Delighted the new meds have made such a difference to you. All the better to enjoy your gorgeous first granddaughter. Congratulations to you and your family.

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Thank you 😊

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Congratulations to you and yours on the birth of your beautiful grandaughter!

Lizzie

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Thank you lizzziep

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Congratulations! What a wonderful experience -which you could enjoy all the more without itching!

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Hi Anna,

Really lovely that Rux has been so helpful to you already, and that you have a beautiful granddaughter to celebrate too!

Best Wishes,

Petere

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Wonderful to hear that you meds are fmhaving a positive effect on your life as will yor beautiful Grandaughter. Congrats on both.

Garry

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I so know how you feel. Five months on from starting Ruxilitinib I'm still reveling in the pleasure of having a shower without itching. It has made such a difference to my quality of life. The other great pleasure in my life is my grandchildren. So enjoy the new arrival and many congratulations to you and your family. Amanda

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Thank you so much I am still in shock at having NO stinging itch after 6 years of daily torment. This is my first grandchild and I always worried how I would be able to help out as they live close by - happy times for now - just hope it lasts.

Thanks also to all the support I’ve had from everyone.

Anna x

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Wonderful news

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Congratulations! She is absolutely beautiful!!! Oh, and congratulations on the successful Ruxolitnib! I may go on this in the future so its good to hear its working 😊. Lesley x

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