Dry Mouth: Hi all, I was diagnosed with ET over a... - MPN Voice

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Dry Mouth

dgk70 profile image
12 Replies

Hi all, I was diagnosed with ET over a year ago I am currently on Hydroxy And Aspirin , I drink about 3 litres of water a day but at night I wake up several times with a dry mouth, is this normal with ET, ? I take a bottle of water to bed and it’s usually gone by the morning as have to drink it to get rid off dry mouth, 🤪

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12 Replies
Rastavapa profile image
Rastavapa

Hi yes I have very bad dry mouth esp at night I also take water up and it's usually gone by morning. I have et also, so many of the drugs can cause it I don't really know why but on a good side it makes us drink plenty of water so it's a good thing maybe......

Hi I have ET and am on Hydroxy and Aspirin too plus some other meds for stomach issues and under active thyroid, I get a dry mouth too it’s particularly bad during nighttime. I wake up during night quite a bit and have to drink lots water even if I have kept up water intake during the day!! Then I wake up again having to pee.!! This is certaink6 normal for me. Best Wishes Liz

fee13 profile image
fee13

I've got ET and on interferon. My mouth gets that dry at night my tongue and throat are sore and raspy. I can't even generate enough "spit" to moisten my gums. I too have to drink water during the night.

Wyebird profile image
Wyebird

Yes your body craves water. All I do at night is drink and wee. I take 2 tablets every night and 3 tablets on Friday Saturday and Sun nights Im gonna try and take 1 in the morning in the hope the thirst will ease and I’ll sleep better.

Roger41 profile image
Roger41

Tell you team.

I saw on this web site information on drugs to company this. I find ginger helps me in a a chew.

Tinkerbell13 profile image
Tinkerbell13

Almost certain it is not the ET, but the drug, which causes dry mouth. Every time I havenot been on a drug, it disappears, then when back on a drug, back comes the dry mouth....a real nuisance! But also know v good for us all, drinking a lot of water, so that is a plus! Best wishes, Tinkerbell.

bjay22 profile image
bjay22

Yes, I do the same. It worried me because extreme dry mouth can escalate tooth & gum disease. I’ve tried the mouthwashes & special toothpastes they sell to lubricate dry mouth like Biotin, but it still doesn’t help much. Still wake up at least 3 times a night to drink. I can’t remember the last time I slept straight through the night. I sure miss that.

TerriR profile image
TerriR

Yes, hydration is important. In the morning I refill several water bottles and leave them around the house to remind myself to keep drinking. The hardest part is when traveling or in places where bathrooms are not so readily available and I have to "ration" my drinking by bathroom accessibility.

Angelinagaffer profile image
Angelinagaffer

You can get a gel for dry mouth from gp, it helps especially at night. You only have to use a little bit.

dgk70 profile image
dgk70 in reply to Angelinagaffer

Thanks Angelinagaffer , do you know what the gel is called ?

Angelinagaffer profile image
Angelinagaffer in reply to dgk70

Biotene😂

dgk70 profile image
dgk70

Thanks to everyone who replied to my problem with waking up with a dry mouth , Have a good week 👍

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