Lots of water?

[kp27kathleen]

I notice every one talks about the importance of water when on Hydroxyurea but I never heard of that in my 3 yrs on it. Info please?

[fee13]

Likewise, I've never been told by a doctor to make sure I drink lots of water. I think generally it is to help flush toxins from medication out and to keep the blood flowing a little easier by "watering" it down 🙂

[kp27kathleen in reply to fee13]

Busy doctors

[Pippa63]

Me neither , never been advised to do this by doctors or heamotologist and wondering why not if its so important when on hu .

[kp27kathleen in reply to Pippa63]

Guess it's especially important as I live in Arizona

[jane13]

the paperwork with hydroxy, if i remember correctly says something like "take with large glass of water"

[Jacqx17]

Hi

I'm not on Hydroxy, only Aspirin and Venesections, I've been diagnosed with PV just over a year, and every time I see my haematologist she asks me and then tells me to make sure I'm drinking lots of water! Minimum 2 litres a day.

I really notice the difference in myself if I don't drink it too.

Being well hydrated helps the flow of blood I believe.

Jacqui

[kp27kathleen in reply to Jacqx17]

Thanks so much

[Cecilie]

Hi,

I've been told it is important to drink water if you have a high level of platelets, to avoid blood clots caused by dehydration.

Cecilie

[kp27kathleen in reply to Cecilie]

Thank you

[WileyFrench in reply to Cecilie]

Yes my haemo said lots of water helps to reduce the “stickiness” of platelets. I have ET.

[Mazcd Partner MPNVoice]

If you have a MPN and indeed if you are taking medication it is important to take good care of yourself, good nutrition is important, eating a balanced diet, and drink plenty of water and be careful to prevent dehydration by avoiding excessive alcohol and caffeinated drinks.

[kp27kathleen in reply to Mazcd]

I appreciate your comment

[kp27kathleen in reply to Mazcd]

Sorry but what is MPN?

[Mazcd Partner MPNVoice in reply to kp27kathleen]

MPN - myeloproliferative neoplasm - which are ET (essential thrombocythaemia) PV (polycythaemia vera) and MF (myelofibrosis), are you taking Hydroxyurea for one of these MPNs? Maz

[kp27kathleen in reply to Mazcd]

Yes ET

[WileyFrench in reply to Mazcd]

Ah, so that’s why caffeine figures into it. I hadn’t been able to find anything definitive on why to avoid caffeine when taking hydroxyurea or clopidogrel. It’s the potential dehydration factor then?

[stillkicking]

I was advised to drink between 2 and 3 litres of water per day, whilst taking hydroxy by my haematologist. Also to avoid too much tea and coffee. I was already drinking quite a lot of water per day prior to the hydroxy, because I really seemed to need it when my platelet levels got quite high (I was above 1250 in the last couple of months). I would get headaches if I got behind with the water intake. I notice that water is helping me tolerate the hydroxy, and this was especially noticeable for the first 3 days of starting this medication.

[Ovingite]

When I was diagnosed with ET my haematologist advised me to drink lots of water and limit the amount of caffeine intake. Keeping well hydrated is important to reduce the risk of clots forming. I'm on hydroxycarbamide and aspirin. My GP also advised keeping well hydrated as I also have high blood pressure............. and above all it seems to make sense, so I do it.

[DonaldOrr]

You wouldn’t believe the difference in me if I fail to drink enough water. I’m not saying it’s mandatory but it makes such a big difference to to my wellbeing.

[Roger41]

Dehydration gives you dizzy spells, headaches and some blurred vision.

Altered body salts can make you feel unwell with a build up of toxins.

Coke and any other high energy drinks can cause these to interact and change into substances which are hard for the liver to process.

I am a diabetic too so I am always aware of a dry mouth, drinking the recommended amounts of water helps your mental wellbeing too.

Hope this helps.

See your drug sheet in your medication.

[kp27kathleen in reply to Roger41]

Thanks