MPN Voice Patients’ Forum - Belfast

[Mazcd]

Saturday 3rd March 2018 10.30 am – 4.45 pm (registration from 10 am)

The forum will be held in Riddel Hall, Queen’s University, 185 Stranmillis Road, Belfast, BT9 5EE

This forum is free to attend, you are welcome to bring your family and friends with you, complimentary refreshments and lunch will be served during the day. You are required to book to attend this forum, please email [e-mail], giving details of what MPN you have, the name(s) of your guest(s) and any special dietary requirements, i.e. gluten free, vegetarian, for you and your guest(s). Please do not request places to attend via this forum or by a PM, you must send an email.

Travel information for Riddel Hall can be found on the Queen’s University website...

qub.ac.uk/about/Living-in-N...

Programme

The programme is available here... mpnvoice.org.uk/documents/f... and will include talks from Prof Claire Harrison, Guy’s Hospital and Prof Mary Frances McMullin, Queen’s University Hospital.

The programme will also include talks from patients and a family/friend of a MPN patient. These talks are very encouraging for others to hear, if you would like to give a talk about your MPN, for 5 – 10 minutes, then please let us know, email [e-mail] with details of your talk, please include a contact phone number so that a member of our team can contact you. We would also like to hear a talk from a family/friend, so if anyone in your family or one of your friends would like to give a talk about how your MPN has affected them and how they deal with it and how they support you, then please let us know.

If you are able to display a poster to advertise the forum please download one here...

mpnvoice.org.uk/documents/f...

[eire]

Is anyone going to this? I went to one in Dublin many years ago now and it was excellent.

[mjfin72 in reply to eire]

Hi I am going to the forum. Looking forward to it as there are always so many positive comments regarding these events.

Mandy

[eire in reply to mjfin72]

They are brilliant Mandy. I went to one in Dublin years ago but I knew absolutely nothing about my illness then. Had a great eye opener - and shock to discover I had the worst MPN!!!! I have MF will b 9 years next April. Which MPN do you have?? Hope we can catch up. I'm coming from Sligo so will stay overnight love Belfast anyway. It's great talking to other people who have the same MPN as yourself.

Best wishes.

Pat

[mjfin72 in reply to eire]

Hi Pat. I have ET. Mpl gene. Diagnosed Sept 16 after going to docs about joint pain and stiffness in hands and feet. Bloods flagged up that my platelets had been steadily rising from 2011 and were around 800. They are now around 1.2 millon. Im really looking forward to the forum and like you will learn a lot more about our conditions. I don't know a lot about MF/PV so will be good to talk to people like yourself. Hope we can meet up.

Take care

Mandy

[eire in reply to mjfin72]

no reason why we shouldn't. Everyone tends to veer towards there own MPN eventually which is natural. We all need to know how others manage and compare notes!!! I'll see you there.

best wishes.

Pat