Hives and rash: Hello, I wanted to see if anyone... - MPN Voice

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Hives and rash

Kimmyk profile image
6 Replies

Hello, I wanted to see if anyone that has polycythemia vera had problems with hives and actual rash. I have little pimples something forming in groups of three . All doctor said it was not scabies and one doctor said it was scabies gave me enough medicine to kill scabies over and over . It has not gone away . Dermatologist now saying it is not scabies . From the beginning I asked my hematologist and an MPN specialist if this could be related to polycythemia vera. The itching can be intense and sometimes can get infected . It also feels like crawling in the skin . Now the dermatologist and the allergist are suggesting Xolair shots . I was wondering if anyone else has had any experience with this and what has helped ? Thank you.

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Kimmyk
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linphy profile image
linphy

Hello, I get hives and itching. I have been admitted into hospital 3 times since July. I now have an Epipen, I take fexofenadine and antihistamines. I have ET and only on Clopidogrel. I was originally on aspirin and Pegasy, but they thought it might be those that caused hives. I am under dermatology and now seeing immunology in December. I do feel for you with the itching and hives

Linda

Kimmyk profile image
Kimmyk in reply to linphy

Please keep in touch. Let me know what works for you. I'm trying the xolair shot today. I'm hoping it works

linphy profile image
linphy in reply to Kimmyk

Let me know howyou get on

Kimmyk profile image
Kimmyk in reply to linphy

Hi just a follow up. Xolair shot helped to clear the rashes. Hydroxyurea has helped with the itching.

Mallard profile image
Mallard

Funny enough I developed a rash which was intensely itchy and uncomfortable, I wasn't sure what it was until I visited the doctor and she said straight away I had shingles- never had anything like this before- I have ET/PV and take hydroxycarbamide 14 weekly. Best wishes

Kimmyk profile image
Kimmyk

Thank you for your response. Please keep in touch and let me know what's work for you. Getting the xolair shot today. I'm hoping that this works.

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