I was just wondering about the benefits of seeing an MPN Specialist and how I would go about doing that? I believe that there isn't many practicing MPN Specialists. I was only diagnosed by the haematologist earlier this year with ET (jak2+) and put on HU because of my age. Since then, I've had three further appointments all with the Nurse Practitioner who I must say is both professional and lovely. However, I'm beginning to wonder if I will ever see the haematologist again?
Have any other people requested to see an MPN Specialist, and if so how did you start the process.