Hi MPN friends, I just wanted to let you know that I will be starting the process of a stem cell transplant next weds 22 June. I live in France and will be having the treatment in Montpellier. I have a femal German donor 10/10 match. Words cannot express my gratitude at the gift of her stem cells. At this time when we are talking about Europe and whether it is Inn OUT or shake it all about, this wonderful, selfless German woman is doing all she can to give the gift of a longer life. It is overwhelming.
So it is admission 22nd, procedures and tests 22&23, chemo 24-27, stem cells 29th.
Keep your fingers crossed for me because I know it will be a long and bumpy road. I send my love to all my MPN friends but in particular I would like to say a great big thank you to Gary aka crapaud. He and I spike together for a long time earlier this week about his experience of a SCT in France and he reassured me and grounded me. I have my eyes open but I am calm. And I am very grateful.
Best wishes to you all Jane
( I am 50 years old and I have post Et MF with CALR mutation. Have been on 40mg Jakafi per day since last August but have been transfusion dependent since starting the meds)
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Jane65
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Sending you all my very best wishes for a successful journey there Jane. . It's not the easiest decision to make but once you have decided to go for it don't look back. Agree with your donor comments and acknowledge the advice and support Gary has given you. Keep us posted as and when. Chris
very very best wishes - and please tell us how it goes - not just because we wish you well, but it would be a service to those of us (like me) who are close to a similar decision.
Sending Best wishes & 🙏🏽 will be with you I am to start Ruxolitinib very soon . Hugs x
Hope it all goes well for you Jane. As said earlier, it is something that might be in a lot of our futures so any first-hand experience will be of huge help. And, of course, you have a whole army of well-wishers following your progress and sending you healing thoughts and loving wishes. Take very good care of yourself, Christine
Very best wishes to you Jane,one thing for sure you will have the best care possible here in France,I live here too,my care has been excellent.We all will be thinking of you,JR can vouch for that ....Bon Courage ,keep strong,we are all with you in spirit.
Hello everyone again, well it's almost here. It feels a little like I am just about yo step off a cliff edge and hope for the best! But I am also feeling positive, prepared and up for it. The consultant in charge of the unit said that needed to write off a year of my life.
I thank you all so much for your good wishes. I also send them straight back to you all. A special hug for Mr J Reject!
You have the strength and spirit of all of us with you on your journey. If you feel down or scared just picture all of us forming a circle of strength and caring around you. Katie
Very best of luck, Jane. I too live in France, in the Ariege, not that far from you. I find the medical treatment here second-to-none, see my haematologist every six months in Toulouse, so far all going well, but of course the future is unknown. I do hope your transplant works out, it looks like you have a good chance.
Sending you lots of love and hugs from the USA. Please keep us informed as you are able. Also, best wishes to your family as they suffer right along with us. Gail
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