eeesential thrombocythemia?

[fady]

im 29 years old with routine blood count platlets was 560 follow up after 1month it was 650 then reached 800 after another 1 month

i sought medical advice which suspect ET asked some investigtions jack 2 bcr abol and abdominal ultrasound

jack 2 and bcr abol were negative and no splenomegally by ultrasound

by continue follow up platlets decreaes to 660 after 2 months .

i have intese itching in my feet and hand relieved by antihistaminic

what shall i do next and these symptoms related to E.T OR NOT?

thanks in advance

[Paul42]

Hi - there is another test you should ask for - CALR. Only about 50% of ET Patients are JAK2 Positive.

Make sure you keep pressing for answers. Good luck to you.

Paul

[fady in reply to Paul42]

ok thanks

[lizzziep]

i have ET and often get itchy hands and feet! But you will probably need a bone marrow biopsy to confirm that you have it.

Best wishes

Lizzie

[fady in reply to lizzziep]

ok thanks i will do it soon

[Mazcd Partner MPNVoice]

Hello Fady, you do need to speak to your GP about this or the haematologist. Maz

[fady in reply to Mazcd]

ok i will what do you think about the prognosis?

thanks alot mazcd

[Mazcd Partner MPNVoice in reply to fady]

I can't say I'm afraid, you will have to discuss this with your haematologist. Maz

[fady]

No im from egypt

my doctor already asked me to do bone marrow biopsy

i will do it soon but im worried about the prognosis of ET

what do you think ?

thanks alot osidge

[nivana]

I had terrible itching/crawling feeling all over my skin before I was diagnosed , it nearly drove me mad. Once I was diagnosed (et and pcv) and went on hydroxy it all stopped. I occasionally get irritated skin, but find SBC gels help me enormously. Hope all goes well for you.