The doctor says I'm normal..!

[AndyT]

My wife probably wouldn't agree but my haematologist tells me I'm normal..!! My platelets were 348 at today's consultation - back in normal range for the first time in nearly 13 years. Red count is fine and while white counts are at the low end of normal they are manageable. Still no side effects from Pegasys and now reducing to one injection every 3 weeks, which is great. I guess it's not right for every one but Pegasys has worked very well for me - down from over 1,100 in just 3 months - I'd strongly recommend considering it if anyone is about to start cyto-reductive treatment.

[craigdarcy]

Congratulations Andy. You couldn't have had a better start to the new year.

Can you come and let my new year in next year please.😄😄

[jane13]

congrats!

[Nickthedevil]

That's great news. Really pleased for you.

Karen x

[lizzziep]

That's good news! A great way to start the new year.

Best Wishes

Lizzie

[clematis26]

Terrific news for yourself and everyone! Happy 2016! sue

[Hidden]

That's great news Andy you must be so pleased xx

[Hidden]

This is good news , well done.

[Hidden]

so pleased to hear your good news Andy, ps dont think anybody is completly normal in this world haha but i know what your Doctors mean ! best wishes Holly 👍

[Helpatlast]

Great start to the year - real pleased for you!

[jeanr]

Great news.

[Joybard]

This is fantastic news, so happy for you! Such a shame that his drug is a postcode lottery. My hubby had to start on HU. This seems to be working in reducing platelets gradually but he has had to reduce his hours to 3 days a week as he is more tired and has difficulty concentrating since starting treatment. I sure the rationing is about purely cost, but it seems very short sighted as i f people only have to have 3 weekly injections surely longer term it would save money and improved quality of life.

[AndyT in reply to Joybard]

I agree with you - there must be longer term savings with this newer treatment.

I’m lucky that Pegasys is available as frontline treatment for ET here in Leicester - if your husband is not finding HU easy to tolerate it’s worth pushing for Pegasys as an alternative as I’ve heard of people being allowed to switch after trying other medication.

I’m over two years on it now and have reduced to 45mcg every 3 weeks - hoping to extend to once a month from Feb.

[Joybard in reply to AndyT]

Hi Andy. He is tolerating quite well apart from the fatigue so we don't have any grounds to switch really. Our Consultant said that our Authority will only consider it if we have tried all other medication options first.