Red and burning face: Hi I was diagnosed with PV... - MPN Voice

MPN Voice

10,340 members14,250 posts

Red and burning face

suzanneh profile image
12 Replies

Hi I was diagnosed with PV 2 years ago. Recently I have been experiencing extreme hot flushes to my face. My face goes bright red and then it feels as though it is on fire. After about 2/3mins it calms down. Not a nice feeling at all. I mentioned it to my consultant asking if this could be due to me having PV he said he didn't think so!! Has anyone else experienced this?

Written by
suzanneh profile image
suzanneh
To view profiles and participate in discussions please or .
12 Replies
Aime profile image
Aime

Yes, I get extremely flushed in the face especially when I am close to venesection time. I have PV. Not nice, I know. Every sympathy. Aime x

suzanneh profile image
suzanneh in reply to Aime

I had a venesection yesterday, will take notice if the burning subsides. Thank you

suellj profile image
suellj

I was diagnosed with PV 7 years ago and have had these sudden flushes on and off ever since. At first I thought it might be the menopause but couldn't understand why it was just confined to my face. I always dread it happening on social occasions as sometimes it passes off quite quickly but other times it can last for a while. My consultant also just shrugged when I mentioned it so I assume it's not listed in typical symptoms.

fannetastic profile image
fannetastic

Suzanneh I also get the flushes but all over. I am constantly hot, but sometimes these " flushes " can last for ages. At 67 definitely not menopause. I have asked to see an endocrinologist to rule out anything to do with the hypothalamus which can control the body temperature. ...If that gets rules out then its time to put it down to the unwanted visitor we have. It seems a lot of those typical symptoms Suellj like the burning, itching, ect are not being taken seriously by some consultants. I am very lucky with mine.

suzanneh profile image
suzanneh in reply to fannetastic

I don't think some consultants do take side effects seriously. I was suffering probably 1 year before I was diagnosed with PV, with aquapruritus. I still suffer with it but take antihistamine tabs daily so I can shower and bathe. the burning to my face has only just started.

sand-bog profile image
sand-bog

Hi Suzanneh, I was diagnosed with PV about a year ago and I remember my haemo making a comment about my "ruddy complexion" the first time I saw him so surprised others dis-missing it! Sometimes worse than others. Good luck with it.

suzanneh profile image
suzanneh in reply to sand-bog

Feeling better that I'm not on my own. Knew it wasn't the menopause because I have been through that! It just happens when you least expect it.

harleydavidson profile image
harleydavidson

Hi Suzanneh. This has not happened to me in about a year, but I used to carry a bottle of Vitamin E spray from the Body shop and spray my face instantly, it seemed to help cool and soothe the flushes. I hope this helps. Mel

suzanneh profile image
suzanneh

Thank you, I will try that. Going into town this afternoon.

Hi Suzanneh , I have et and suffered with red face and burning for years, really sympathize , as soon as I was put on loratidine antihistamines it really helped a lot, still get a flare up every now and then but not all the time . Good luck , and hope you find a solution .

suzanneh profile image
suzanneh in reply to

Thank you

Inca profile image
Inca

I used to have red face and palms of hands when first diagnosed,all gone now since Hydrea meds,except for one patch remaining top of left cheek bone,which sometimes is very red and sometimes not! Defies all moisturisers,will try the Vit E spray

You may also like...

Really red faced and feeling like I was going to pass out and sweating

wanted to ask if anyone has experienced having a really red face and feeling shaky and feeling like...

Red spots particularly on my legs

noticed red spots on my body particularly on my legs. Today they are really flaming red and hot,...

telephone or face to face consultations?

are offering telephone appts as well as face to face consultations. I would like to minimise the...

Does anyone with PRV suffer from red, swollen face (definitely can't be described as \"ruddy complexion\", more than that)

days. Face very red, itchy, hot to touch,swollen and although skin doesn't look lumpy you can feel...

Breakouts on the face

I was wondering if anybody else suffers from breakouts on the face? At the moment I have a large...