Pain behind right eye/Sumatriptan - National Migraine...

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Pain behind right eye/Sumatriptan

Mamatrying2makeit profile image

Hi all,

I suffered from a migraine for 2 whole weeks and was self medicating with paracetamol, cocodamol (as advised by pharmacist) and finally decided to go to my GP when I started vomiting on day 13/14

I have never suffered from migraines before but my GP sent me to hospital as she was concerned about my symptoms such as:

*Dizziness

*Nausea & vomiting

*Pain in eye socket/behind eye

*blurred vision in right eye that lasts around an hour

*tender skin on eyebrow to touch

I went to the hospital and they did a blood test, said all is fine and that my GP shouldn’t have sent me to hospital (which didn’t help, I already felt silly being at hospital for a presumed migraine when there is a pandemic happening) but I was prescribed Sumatriptan. I took 1 - 2 days ago at 50mg and it just basically knocked me out for 8 hours, a day later (yesterday my migraine was back again in full swing. So I took one again last night and the same thing happened I finally got some sleep and now it’s back again. The hospital said my blood tests were fine but should my migraine be coming back again? I’m confused at what to do as I’m new to migraines. If anyone can advice please do (I can’t take sumatriptan in the day as I’m a single parent and I physically cannot function as a parent alone in the day whilst doses up on this tablet)

Thank you

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Mamatrying2makeit
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11 Replies
Chleo11 profile image
Chleo11

Hello. I'm sorry to read that you've had a migraine for 2 weeks. Are you on any kind of medication that would explain why you have suddenly developed migraines? I believe that your GP was right to send you to the hospital. There is unfortunately one thing you need to know: migraine sufferers are not well treated by the medical body generally and specially not in hospitals. There is a huge stigma despite the fact that migraines are a recognised debilitating neurological condition. Migraines don't show in blood tests.

However, in your case, your GP needs to refer you to a specialist ASAP. This may be something else like occipital neuralgia.

Second thing: you are not supposed to take sumatriptan, or any other kind of triptan more than 8 days in a month, or your migraines will get worse. It is well possible that what you're experiencing right now are rebound migraines from your co-codamol and sumatriptan overuse. Ask your GP for another triptan. Sumatriptan is absolutely awful and hit you hard. I used it only a few times and I got such bad 'delayed' migraines. I thought I was dying. I honestly can't understand how they can sell it over the counter in pharmacies!!!!

Have you tried things like ibuprofen migraines? (you can find it in supermarkets and it could help you, but then again, it counts towards your 8 days in a month). Putting ice where it hurts is always good. Eating at regular times, healthy food.

I am guessing that you're a female. Your GP may need to check what is happening from the hormones perspective. Unfortunately, doctors always seem to dismiss this as a cause of migraines.

All the best. Let us know how you're going. ;)

Anth60 profile image
Anth60 in reply to Chleo11

What am I supposed to do - it’s a joke - only take 8 days in a month? I’m in bed for half the month - seems like nothing works and still waiting for aimovig or Ajovy

Mamatrying2makeit profile image
Mamatrying2makeit in reply to Anth60

Sorry I’m a little confused ☺️did you mean to write this on this thread?

Mamatrying2makeit profile image
Mamatrying2makeit in reply to Anth60

Either way I wish you well. That sounds rubbish 😓

OilyWiggles profile image
OilyWiggles

Avoid cocodamol. It can transform episodic migraine into chronic (that happened to me). Sumatriptan is a life-saver for me and I have taken up to 300mg in one day without ill effects. Everyone reacts differently though and it obviously has a powerful sedating effect for you. There are several other triptans though, and you may find one that works for you. The thing with migraines is to hit them hard and early. Sometimes a high dose of aspirin or ibuprofen can nip a mild one in the bud (or a combination of aspirin/ibuprofen and a triptan).

As Chleo11 said, you may have overused the medication - it's easily done. Your GP should know about this (if not, go to a different one!) and should prescribe something like a course of naproxen to help you come off the cocodamol. You might also benefit from an anti-nausea medication.

I'd also recommend you do a bit of research yourself, as many GPs might not be that familiar with all the current thinking in the field. Check out the Heads Up podcasts - they're a great source of information (have a pen and paper to hand while listening).

Get better soon.

Hi, I have suffered with migraines for decades, I have tried just about everything by now. I was using Sumitryptain for years, but I found it only worked if I took it at the very first sign of the migraine, yes they do knock you out. I also get different types of migraines which isn't helpful. About 3 years ago the migraines got worse, every morning waking up with pain behind an eye, nausea, dizziness, flashing lights the lot. My doctor gave me Topirimate tablets, they are also used for epilepsy. I take one each night and so far I have only had a handful of migraines since.

Just a thought, I also get sharp pains behind my eye when I need new glasses. Sorry to give you an epic to read, hopefully you find the right help soon.

Mijmijkey74 profile image
Mijmijkey74 in reply to

Hi Pita66 out of curiosity are you still taking Topiramate and are you taking it along side other medications? And do you get side effects from the Topiramate? I recently started on 9th of October 2020 taking 25mg each night for whole body shaking, tremer, jerking awake from sleep after only just having fallen asleep and waking with my hands acting as if they are doing tasks done normally during every day, plus rls and when I'm awake body switching off, unable to keep eyes open, I vacate briefly body goes limp, anything I'm holding I either start to drop or do drop as wrists go limp as does grasp and I start to slump forwards but never hit the floor as it is the sensation of falling that draws me back to alertness during that process my eyes spin or go into the back of the sockets. I then have to sleep. Also for eyeball, eye socket, head, base of skull, neck, bridge of nose and top of skull and behind upper eyeball lid pain with darkness closing in on me like a tunnel and feeling very nauseous that my neurologist says is migraine but I'm not sure as no auras. So prescribed which I had to give writen consent for Topiramate. It's stopped some of my symptoms can't take beta blockers due to low weight and heart/lung damage from asthmatic coma leaving me brittle asthmatic whith this shaking and jerking, rls and walking issues, only other medication I take is asthma inhalers fostair, spiriva, salamol, but Topiramate I was warned about some side effects that will happen to be prepared for, but I'm getting a whole lot more. Am completely out of it most of the night, hallucinating, hearing, seeing things, paranoia, walls warping am now accustomed to those side effects, it is the very confusing knocked out sleep and dreams I can't deal with full of endless lists of numbers in boxes with signs like this ✔️<X next to them that are constantly moving up fast like information on a screen before had chance to read properly, then walking next day unable to function, aching all over like I've been hit by a lorry and for several hours just in a very confused stupor, the sleep when it finally hits me, knocks me out completely as in paralysis but my brain is still semi aware, my walking has gone worse after taking the tablet like I'm very drunk but don't feel it. The side effects are numerous some of which I have no words for they are so strange. Actually feel like I'm in some kind of weird futuristic alternate reality that isn't reality and not sure if Topiramate is doing me more harm mentally affecting my grasp on reality leaving me hallucinating, paranoid, in a weird confused sleep state and in a confused stupor several hours upon waking than good state. Neurologist wants my GP to up the dosage to 50mg and so on. Neurologist did say if I get any suicidal thoughts to stop medication immediately, do wonder if at 50mg would I be in any state to stop if 25mg takes me out of it, but thankfully no suicidal thoughts. Sorry for long message. Have you had any side effects. Also get really cold fingers, hands, toes and feet and my teeth chatter.

WhyK8 profile image
WhyK8

Hi sumatriptan floors me too, plus I feel rotten after taking it. I've found taking 900mg (3 tablets) of aspirin helps me. I have worked in pharmacy for 20 years and it was a pharmacist friend who had been reading up on migraines who recommended it to me. Studies have shown it's as effective as sumatriptan. I have found the side effects to be much better although it can be harsh on the stomach so try to eat something with it. It might not be suitable for you if you suffer from stomach ulcers or asthma.

ACritical profile image
ACritical in reply to WhyK8

One time, a few years ago, I was in such a bad place with my migraines that I decided enough is enough, all this medication is making things worse and I ditched all medication and rang NHS helpline if they could offer help to get through the attacks until I saw a neurologist. The doctor who rang me back told me to take 1 Nurofen 600mg together with 2 paracetamols 500 mg each. I use the paracetamol now also as suppositories when I am nauseous with a migraine and I always eat a gingerbiscuit with the pills. Now that I am on regular Hydroxocobalamin injections, my migraines have almost gone away. An odd one still, much reduced in pain, frequency and duration, when my B12 levels are too low again. This is what works for me as well knowing my triggers, keeping a healthy diet, regular sleep pattern and exercise

Onthemove1971 profile image
Onthemove1971

I am surprised the hospital or doctor did not treat you until it went away.

Please start to listen to the podcast “Heads up”, they are 2 migraine specialist. They have changed my life!

When I have to go to the hospital they give me a cocktail, IV fluid-Imitrix, Anti-Nausa and caffeine. This works best but it must be given in IV fluids. I do not leave the hospital until I am migraine free.

Migraines are a with you for many years so learning how to deal with them is very important. I have been taking the preventative magnesium and feverfew.

As soon as I feel the same tinge of pain in my head I take something. I start with extra Magnesium. It the pain is still there I take over the counter migraine medication with a cold Pepsi and usually eat something with protein ( very important to not skip meals). If I still have it I get ice and put it on my head and neck. If I still have it I take Imitrix (100mg), you could cut your dose in half and see if it helps you. If I still have it, I have an injection of Imitrix and usually it goes away.

There are times I need to go to the doctor or hospital, I always go within 1 day and don’t wait or it could go on for a long time.

I have also started using roll on peppermint and hot tea ( peppermint).

Hope these tips help. Good luck

UPDATE - thanks so much to you all for your great advice and kind words. My eye has now developed a purple-ish hue right next to my Iris in my Scelera and is quite bloodshot around it too. I called the doctor back and he said in most typical cases Sumatriptan should’ve got rid rod of my migraine if it is migraine related. I’ve booked in for an eye test next week and I’ve been prescribed Diclofenic Potassium for presumed inflammation behind the eye. I’ve taken one today and so far so good the pain has actually gone and I can function on them too! Let’s hope my eye test goes well but thanks so much to everyone for chipping in here.

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