cluster headaches: I have been... - National Migraine...

National Migraine Centre

9,199 members2,689 posts

cluster headaches

mollymalone2 profile image
6 Replies

I have been suffering with cluster headaches for 16 yrs,,pizotiphen is the tablet I take,,only finished a cycle in 12TH December n now they r back again,the pain is excrushiating at my wits end now with them.I'm 66 now n find them harder to cope with .

Written by
mollymalone2 profile image
mollymalone2
To view profiles and participate in discussions please or .
Read more about...
6 Replies
monster15 profile image
monster15

Th y I will relly like to talk to some like you my number is 3162011211

clusterhead profile image
clusterhead

I too have suffered for 12 years now and totally understand your desperation. I take Lithium daily as a preventative, which really helps. Mine became chronic, daily, so I was desperately seeking some help. They still breakthrough every 18 months or so but a month long course of steroids usually blocks them while the Lithium has time to kick in. Oxygen through a re-breathable mask - the one with a bag attached-is invaluable at the start of an attack-I wonder if you have tried any of these?

Also, I find Magnesium helps-apparently we sufferers lack magnesium, so it's worth a try. I hope I have been some help, I know how you must feel but hopefully these remedies will work for you x

babs1234 profile image
babs1234

I don't think none sufferers understand how debilitating migraines are Have you tried the tryptilyne.? Imigran are the ones that for me.

Diamond_girl_xx profile image
Diamond_girl_xx

I personally have tried everything just about to start on the sumitriptan and oxygen so fingers crossed, pitzotifen made mine alot worse though but im guessing everyone is different x

snfg profile image
snfg

Hi, I'm so sorry to hear about your attacks...these things are just cruel, I hate them...I was on pizotiphen for about 18 months...it did work for a while, then I started getting weird visual disturbances and I slept a lot...I moved then onto beta blockers, propanalol which whilst they didn't stop the attacks, reduced their severity, frequency and length of attack...and I have a fantastic heart beat.....I really hope yours get better, take care

snfg profile image
snfg in reply tosnfg

Sorry..just thought I would mention that the visual disturbances I mentioned were not the aura I normally get, but something different altogether..

Not what you're looking for?

You may also like...

cluster headaches

hi i'm new to this so please bear with me. My daughter has been having headaches for a long time...
frankie2010 profile image

cluster headaches

Hi everyone I,m new to this site and just need to talk and hopefully get some advise. My husband...
kimmie89 profile image

Cluster Headaches...

I have today done my own self diagnosis after a worrying 6 months of mysterious headaches and...

Cluster headaches

Has anyone found the Sumatriptan Nasal Spray or Injection useful for their headaches. The NHS...
Lilmix03 profile image

Chronic cluster headaches

Hi, my name is majacmun and I suffer from chronic cluster headache. I have been given prednisolone...
majacmun profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.