Have you given up hope on finding rel... - National Migraine...
Have you given up hope on finding relief from your migraine?
Charlotte_NMCPartnerNational Migraine Centre53 VotersPlease select all that apply:
Try to stay positive but it’s hard when nothing seems to prevent them and you’ve exhausted most options
2 years ago and after 5 years on Amitriptyline my migraines reduced and had stopped so I weaned myself off the Amitriptyline and have been headache/migraine free for 2 years! No idea why! I can only think that perhaps they were menopausal ( although I never thought so) and 20 years after the menopause they have stopped. Does that sound possible? I’m 69 years old now and after a life of migraines it’s a miracle! There is hope for everyone!
50 years of migraine - I try to be positive but have tried all common preventatives. I get used to them all & gradually they become less & less effective. Only way out is to take triptans but then I get used to those too! Have to go cold turkey & start the whole cycle again!
I've had migraines for almost 40 years, and spent so much money on all of these treatments, drugs, etc. Now I'm trying Botox, but that doesn't seem to help. I know that the United States has approved a new drug. We don't have it in Canada yet. It works on 50% of the people. It's always the same story, like you said,
Like you, I have to rely on Triptans too but they give me rebound migraines and it's a constant battle each and every day. My story is like yours exactly! Nobody understands what's it's like to live this way.
I’ve had headaches since my periods started at 13! I’m 55 now but the last 6 years have been hell with the menopause! I’m hoping that one day my hormone cycle will stop fluctuating and free me from this miserable pain!
I have finally found a way to massively reduce my migraines not just in frequency but also in pain and length. (My migraines got even worse when I started the menopause) I ask to be referred to a neurologist, been in all sorts of scans etc., I also had blood tests done, had my vitamins checked. It turned out I was low in vitamin D and again low in vitamin B12. On and off during my life, I had vitamin shots, no one ever told me I was B12 deficient. I was low but just above the cut off margin. Also low in Folic acid. I was given the loading doses and put on monthly Hydroxocobalamin injections for life as I had many other neurological symptoms apart from very bad migraines that lasted 3 days at a time. My neurologist was trained in Sweden and treated me not just for migraines but looked at the whole of my being. I am off all heavy medication apart from the odd Paracetamol or ibuprofen tablet and my injection and other vitamins and minerals ( I get them checked regularly). It was hard to go cold turkey with the migraine medication but well worth it. I do have my triggers, like lemon juice or oranges also sulfites etc, but I try to eliminate those in my diet. It took a while before the improvements set in, first to go where my migraines, within 14 days. Getting the feeling in my lower legs and feet back took more than 1 year. Best thing of all, at work, I can be relied on. So don't give up, start asking questions and do your research on days you feel ok. I had enough of being treated by my GP, quick in and out with yet another prescription which only made me feel worse after a while. You have to start managing yourself. Vitamin injections don't bring in the bacon for the Pharmaceutical industry, they rather have you put on expensive medication. Try this first, together with watching what you eat and drink, give it time to heal your body and if that really doesn't do it for you then go back to what is on offer for you next.
May I ask what your B12 level was please? I had my level taken and was told it was ok but I was not sure if I was low or not. My Vit.D3 level is definitely very low but I think taking the supplements gives me more migraines. Also by reading up about Vit.D3 I have been advised to take Magnesium and Vit.K2 with it but I cannot take Magnesium as it upsets my stomach and I am very wary of Vit.K2 as I have heard it clots your blood. I feel so confused by all the advice I have read and been given this site and Facebook sites that I don't take anything now. It's all so complicated and people say our GP's don't understand supplements so I feel am going to get much help if I go back and get more tests done. Feeling very downcast about it all.
I have suffered from chronic migraines for over 40 years and it has ruined my life. I have tried every kind of medication and therapy costing me thousands of pounds but I am no better. I cannot belong to anything or make an arrangement to see anybody as I always have to cancel making me look as if I am some kind of hypochrondriac who is always ill and in bed and everybody who knows me are absolutely fed up with it all so I am now ignored most of the time. I feel like an outcast now, that person who is always ill and in bed (which I am!) I have so many migraines if I add all the days together that I have to spend in bed it amounts to over 3 months of every year. It is heartbreaking what I have to suffer but I don't feel I can try and explain how bad things are to anybody now. I cannot have my family to stay as I cannot look after them or plan to pick my Grandson up from school as a migraine can come on at any time and I have to cancel at the last minute. I am more disabled than anybody I know. I have lost so many friends because I cannot meet up with them and they just lose interest. I despair at the way I have to live but it seems that nothing can be done to help me. I feel that there is nobody in the whole world can who is able to help me and I feel so alone. I wish I could talk to somebody about it all but there is nobody. I have two daughters and I know they are absolutely sick of me being ill with migraines and rarely ask how I am. If my husband tells them I am in bed they never ask me the next day how I am, it is just how things are. They are totally fed up with me which makes my life even worse. My husband understands but he just gets on with life life and goes out without me now. My life is not worth living really but I struggle on day in and day out as I am a very strong person. My GP is lovely but even he has no idea how bad things are. He has done all he can for me so I have to live this way for the rest of my life. There is no hope.......................................
I feel the same as my was a result of a head injury as well. It is so heart breaking.
Like so many, I have given up hope of finding anything to help with my chronic migraines. Migraines have ruined my life. I do not belong to any clubs or organisations any longer as I can never get there so cannot join in with anything at all. I have difficulty getting to see the doctor and cannot get to the dentist these days as I have to cancel at the last minute so don't make appointments any more. I never get to the hairdressers, my daughter cuts my hair. It has taken me 11 years to get my eyes tested! My life is crippled and it seems that I am alone coping with my sad little life. My children are fed up with it all and I cannot look after my grandchildren, they cannot come to stay as I am always in bed. The situation is chronic but I have to accept that my life is not like other peoples. I just stay at home and cope from day to day with one migraine after another, it's never ending and nobody understands. I have no hope either with the new medication that's coming out now as I feel pretty certain it won't suit me as I am so sensitive to anything and everything I try and take. I am so intolerant to so many things. I know this sounds like a hopeless tale but sadly that's what my life has now become. As I said, migraine has crippled my complete life. It's so sad..................
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