I started experiencing dizziness, vertigo and concentration issues end of last year which developed into full-blown vertigo and migraines in December. I have pretty much non-stop migraines, blurred vision, nausea, vertigo, muscle and joint pain to varying degrees since then. At best, I manage a few hours a day with just the edge of it but the slightest thing can move it into full-blown mode such as bending down, sudden movements, reversing the car, sudden noise, strong smells, stress, tiredness etc. Food makes no difference but I am pre-menopausal.
I have never had migraines before now and due to the neurological symptoms have been tested for MS after an MRI scan showed lesions but thankfully after a very stressful 10-week wait, the lumbar puncture came back clear, the downside is the neurologist has now signed me off so back to GP to start all over again.
I have been put on so many drugs, most of which have not worked at all and given me more problems. Now trying Topiramate for the 2nd time, currently on day 7, not feeling quite so drugged as I was at the start of taking them. I now feel very tired, dopey and unfortunately no let up on the pain yet. The first time I took it, I had severe pain in the right eye and my husband thought I was going to have a stroke, however, my doctor also had me on strong vertigo pills so this may not have helped, hence trying them again. Gabapentin stopped the joint pain but didn't touch the migraines, made me feel a bit spacey and was gaining weight dramatically. Propranolol dropped my already low blood pressure but the worst was it made my mucus membranes red raw (inside of my nose and lady bits!). I then moved onto Verapamil (Securon) but on the 3rd day woke up and my throat was swelling up and my gums were covering over half my teeth. Tried Candesartan but this had no effect on the migraines but made me very anxious and once again started to make my gums/throat well. The Dr will only give me Codeine for the pain which worries me as I know this can itself cause headaches and even these don't offer much relief, though I try not to take until absolutely desperate.
I am desperate to get my life back. I have stopped going out unless necessary as I don't know if I can drive home. Everything has pretty much stopped in 9 months. Does anyone have any advice on what has worked for them? My eyesight has deteriorated significantly. Since November I have increased 3 prescription levels, going from no glasses to glass for long and short sight.
I wonder if it is to do with the menopause, though I have no menopause symptoms I did have a hysterectomy 5 years ago but ovaries intact. Makes me wonder as it has come out of nowhere and does not seem to be affected by any foods if it could be the hormones. My eyes always used to have nice clear sclera (whites of eyes) but now they are not so much bloodshot but have thick red lines across them which get more prominent when the migraines are at their worst.