I am new here, and pleased to have this support in what is a very lonely and misunderstood place.
I have had migraine with aura for 23 years. I don't get a headache, but have sensory symptoms such as blurred vision, weakness, fuzzy brain, difficulty focussing, feeling I will collapse, etc. They are very debilitating. I had a stroke 8 years ago which was put down to migraine, They discovered I had a moderate PFO (hole in the heart), and debated whether closure would be helpful, but decided against it. I have been on aspirin, and for many years, 25 mgs of amitryptilene was an effective migraine preventative.
While living in a country with poor medical healthcare, I developed excessive ectopic beats and feelings of unwellness 18 months ago. The cardiologist suggested amitryptilene was causing that, and I weaned myself off it, thinking that maybe I had outgrown migraine. 6 weeks later, in January, 2016 , I had a significant migraine, and it really hasn't settled. The last year or more has been the worst in my life as I battled constant symptoms, feeling as though I would collapse daily. I ended up trying toporimate, naproxen, doubling the amitryptilene etc, but nothing would bring me back in balance. Last year I started some verapimil, and now I take 80 mgs of verapimil and 20 mgs of amitryptilene. The ectopic heart bearts and migraine symptoms come and go and I still don't feel I can hold down a job. I really would like to be healthy and able to live a norma life again.
Some questions: Has anyone had a PFO covered over that has relieved migraine symptoms?
Does anyone have similar migraines where they dont get a headache but you have been diagosed as having migraine and what has been helpful in terms of medication?
Has anyone had a stroke related to migraine, and what advice were you give about prevention?