thought i'd update as haven't been on for a while.
I have changed doctors and asked for a referral for a neurologist.
I have been and they have referred me for MRI scans for the veins and arteries in my head- this is in a few weeks. If there is anything untoward then i may need draining around my eye or a needle puncture to release the pressure around my brain.
I really hope this works, but recommend anyone to see a neurologist for advice.