(I also wrote this in another community but can't seem to unhide it from just there so here it goes again)
I was recently diagnosed with basilar migraines and have been in a cycle-or Status Migrainous- of them for almost five months without a single day of relief. I started topamax/ topimirate about a month and a half ago and it hasn't seemed to help at all. I'm currently on a mixture of other medications (stimulants, sleep aids, etc.) to help mask the symptoms and give me some functional days, but not ones that I want to or should be dependent on in the long run. I've cut out all of the big triggers I can but tend to be triggered by anything and everything. The symptoms change on a daily basis, except for the constant throbbing headache, vertigo/ nausea, and exhaustion. Most recently my speech has been quite slurred, my eyes (specifically behind my eyes) have been feeling hot and painful, and I get disoriented for varying amounts of time.
I'm being admitted into the hospital this week to try to break this cycle and to try out a cocktails of different medications.
I really want to come out of it with these migraines more under control and in an occasional state rather than a constant one and would appreciate any advice on how to contribute to doing so once I'm back home.
I would also love to hear any experiences people may have had with basilar migraines as, since it's such an uncommon type, I haven't met or spoken to anyone with them and it's very difficult to explain to/discuss with someone who hasn't experienced it.
thanks and well wishes to all,