'Not tonight Dear, It might give me a headache!' Or, Stuff PMR/ GCA! It's the Big O headache that makes Doctors sit up and take notice.
So , I get in with the not one but two Neurologists , I start relating my tale of GCA headaches ( complete with coloured in pictures!...
What IS that smell?
tell me it's caused by high doses of Pred and as I reduce further it will go away!!!!!...
Feeling low and fed up
I have now been suffering with persistent headaches for nearly 4 weeks or their abouts to the point were for the first time in a very long ti...
I am the only one....
Am I the only one?... There are times when I just cannot get enough information, I want to know all that's out there about every single infur...
What pain-killers did you take before diagnosis? (PMR)
My GP thinks I may have PMR but she wants me to see a rheumatologist before starting treatment....
Does anybody suffer from permanent migraine? My daughter has a constant migraine, nausea, vertigo for past 19 months and is desperate for pai...
Job interview - dealing with embarrassing sweats
Hi everyone My tapering journey has been going well and the side effects of the steroids and the withdrawal on each reduction are becoming mu...
I fell ill after having a migraine I presented with stroke like symptoms still left with no left leg or arm movement. Speech and face better....
ET and Left sided headache.
I have ETdiagnosed last July and suffer with headache on the left side which comes and goes throughout the day for a couple of weeks or so. T...
3 months post viral meningitis and suffering after effects (sensory overload)
Hi there, I was wondering if anyone has experienced photophobia ( sensitivity to light ) phonophobia ( noise intolerance ) and difficulty bei...
Does anyone on here get hemiplegic migraines? Whenever I get a migraine one side of my body will go completely weak, my face will go numb, my...
BMB and Trephine - Feaful ( New member)
Hi all, Feeling anxious and concerned. Been advised I have Thrombocytosis ( ET )....
Any taking Linaclotide? I feel like it is helping my abdomen pain......
Sotalol and Prolonged QTc
This post is specifically to ask anyone who is or has been on Sotalol or any other drugs that caused PQTc and to know how you are managing th...
Hello again everyone headache question
Have been on 3mg for 8 weeks now ( tapering from 15mg since July 17, age 50 for pmr )....
Does any one get aura migraines ? Is it anxiety ?
I work 30 hours a week and sit at a computer .. I have had such a sore neck and back and had 3 aura migraines in the past 3 weeks that sends ...
Hi. I need some advice....
Does anyone get auras without migraine just light headache but the vision thing is so scary. Wondering if hrt related as just started 4 days ...
Is it a flare or snething else , so much pain
I recently posted that the Rhuemy said to my GP I will probably be in a low dose of pred for life ....
Vascular ultrasound highly sensitive, specific for large-vessel GCA diagnosis
“ We think these results implicate that ultrasound should not only be a first-line imaging test in patients presenting with cranial symptoms,...
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