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Experiences with
Mestinon
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misdiagnosis 🤷♀️
I was started on
Mestinon
fairly quickly and felt an improvement in my energy levels. I had nerve tests which came back normal.
I was started on
Mestinon
fairly quickly and felt an improvement in my energy levels. I had nerve tests which came back normal.
Blueoxo
in
Myasthenia Gravis Association
10 months ago
Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome
[u]TREATMENT OVER THE YEARS[/u]
Mestinon
- unsuccessful Immuran - liver damage Cellcept- unsuccessful Plasmapheresis - unsuccessful IVIG- unsuccessful SFEMG- abnormal Prednisone in high dosage that is then tapered down to 5mg has relieved the double vision.
[u]TREATMENT OVER THE YEARS[/u]
Mestinon
- unsuccessful Immuran - liver damage Cellcept- unsuccessful Plasmapheresis - unsuccessful IVIG- unsuccessful SFEMG- abnormal Prednisone in high dosage that is then tapered down to 5mg has relieved the double vision.
Jen2803
in
Myasthenia Gravis Association
2 years ago
Subclinical Hypothyroidism/Hashimoto's disease
However, the tests all came to nothing, am still on a 1mg dose of prednisone day and 60mg of
mestinon
. During one of many visits to see neurologist,the registrar recommended an in depth thyroid panel be done. Was overruled by neurologist and not done.
However, the tests all came to nothing, am still on a 1mg dose of prednisone day and 60mg of
mestinon
. During one of many visits to see neurologist,the registrar recommended an in depth thyroid panel be done. Was overruled by neurologist and not done.
Cheese14
in
Thyroid UK
3 years ago
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Myasthenia Gravis ,My Dandelion ,My Life
Whenever a symptom appear, I Manage to recognize it, as a weed in my garden, that need attention and occasionally prevention from triggering factors that could cause a Myasthenia Gravis Crisis .My treatment and diagnosis ,EMG ,TENSILON TEST ,ANTIBODY TESTING ,PSYHCOTHERAPHY ,ANTI REJECTION MEDS ,
MESTINON
Whenever a symptom appear, I Manage to recognize it, as a weed in my garden, that need attention and occasionally prevention from triggering factors that could cause a Myasthenia Gravis Crisis .My treatment and diagnosis ,EMG ,TENSILON TEST ,ANTIBODY TESTING ,PSYHCOTHERAPHY ,ANTI REJECTION MEDS ,
MESTINON
faithhope421
in
Myasthenia Gravis Association
3 years ago
FOR ALL SUFFERERS OF FIBROMYALGIA. Hope you will find this helpful.
Mestinon
is one drug that has proved helpful for some people with ME/CFS. Pain signals are believed to need to pass through a series of checkpoints or gates in order to make to the brain. Those gates are believed to be opened wider than usual in FM.
Mestinon
is one drug that has proved helpful for some people with ME/CFS. Pain signals are believed to need to pass through a series of checkpoints or gates in order to make to the brain. Those gates are believed to be opened wider than usual in FM.
Roselil
in
Fibromyalgia Action UK
4 years ago
Medication
Many of you answered back when I mention what happen last April when she took cipro and
mestinon
. Anyone have any comment on situation now. Thanks
Many of you answered back when I mention what happen last April when she took cipro and
mestinon
. Anyone have any comment on situation now. Thanks
Skullgulch
in
Cure Parkinson's
5 years ago
Any advice would gratefully received
Been on
mestinon
but not currently working for me at the moment. Really bad double vision and droopy eyelid following a diabetic retinopathy exam on Friday. The first time I have had those symptoms. My main symptoms are related to the jaw. Can't eat or speak without support.
Been on
mestinon
but not currently working for me at the moment. Really bad double vision and droopy eyelid following a diabetic retinopathy exam on Friday. The first time I have had those symptoms. My main symptoms are related to the jaw. Can't eat or speak without support.
Pishpash
in
Myasthenia Gravis Association
5 years ago
Help to sleep
Taking just half of a
Mestinon
was like paint stripper on the stomach so I don't take it. I told the MG consultant I wouldn't be coming back as it was just a box ticking exercise. Unfortunately my once tolerant nature has become intolerant.
Taking just half of a
Mestinon
was like paint stripper on the stomach so I don't take it. I told the MG consultant I wouldn't be coming back as it was just a box ticking exercise. Unfortunately my once tolerant nature has become intolerant.
Kathy1954
in
Myasthenia Gravis Association
5 years ago
Diabetes 2 and Myasthenia GRavis
No steroids because of diabetes,hopefully
mestinon
helps. All I hope it will not progress to respiratory muscles.
No steroids because of diabetes,hopefully
mestinon
helps. All I hope it will not progress to respiratory muscles.
ivan1949
in
Myasthenia Gravis Association
5 years ago
Cipro and mestinon
Hi, have not wrote for awhile. Thanks to all who replied to my wife's charley horses which went into severe pain all over her body but all ways the legs. I use all the natural things you all mentioned. The pain at bottom of ribs above the stomach bothers me and why there. It has also caused her
Hi, have not wrote for awhile. Thanks to all who replied to my wife's charley horses which went into severe pain all over her body but all ways the legs. I use all the natural things you all mentioned. The pain at bottom of ribs above the stomach bothers me and why there. It has also caused her
Skullgulch
in
Cure Parkinson's
6 years ago
2 Crisis - Twice in one week - a bit much.....
I am NOT going back to hospital, however fast my heart goes, as I feel I can cope better at home, go rest, take
Mestinon
when I need to and go on CPAP if I need. I felt so scared that no-one was considering the MG symptoms which could potentially be far more life threatening.
I am NOT going back to hospital, however fast my heart goes, as I feel I can cope better at home, go rest, take
Mestinon
when I need to and go on CPAP if I need. I felt so scared that no-one was considering the MG symptoms which could potentially be far more life threatening.
CDreamer
in
AF Association
7 years ago
Mestinon in disphagia
Hi, Has anyone tried
Mestinon
(pyridostigmin) for releiving disphagia in parkinson? What were the side effects? Is it safe to use? What can be used for disphagia? Doctor priscribe it for my mother but I am afraid it cause adverse effects on her. Your response will be appreciated. Thanks Sophie
Hi, Has anyone tried
Mestinon
(pyridostigmin) for releiving disphagia in parkinson? What were the side effects? Is it safe to use? What can be used for disphagia? Doctor priscribe it for my mother but I am afraid it cause adverse effects on her. Your response will be appreciated. Thanks Sophie
Rasa2006
in
Cure Parkinson's
7 years ago
Mestinon for disphagia in parkinson
Hi, Has anyone tried
Mestinon
(pyridostigmin) for releiving disphagia in parkinson? What were the side effects? Is it safe to use? Doctor priscribe it for my mother but I am afraid it cause adverse effects on her. Your response will be appreciated. Thanks Rasa🌷
Hi, Has anyone tried
Mestinon
(pyridostigmin) for releiving disphagia in parkinson? What were the side effects? Is it safe to use? Doctor priscribe it for my mother but I am afraid it cause adverse effects on her. Your response will be appreciated. Thanks Rasa🌷
Rasa2006
in
PSP Association
7 years ago
Ocular myasthenia gravis treatment
treatment other than
mestinon
treatment other than
mestinon
StewartALB
in
Myasthenia Gravis Association
7 years ago
Hope at last
I have been prescribed a drug called
Mestinon
, after three weeks can honestly say it's changed my life, has anyone else been prescribed it? I have dysautonomia, EDS 111, I live in the north of Scotland.
I have been prescribed a drug called
Mestinon
, after three weeks can honestly say it's changed my life, has anyone else been prescribed it? I have dysautonomia, EDS 111, I live in the north of Scotland.
Shipston3
in
STARS
8 years ago
Anyone else have MYASTHENIA GRAVIS AND HASHIMOTOS?
Currently I was just switched from 100mg of levothroxine to 125mg of synthroid and I take 60mg 4 times a day of
mestinon
, I take vitamin d and b-complex daily along with a multi.. If anyone knows of any other supplements or treatments or even diet modifications please let me know..
Currently I was just switched from 100mg of levothroxine to 125mg of synthroid and I take 60mg 4 times a day of
mestinon
, I take vitamin d and b-complex daily along with a multi.. If anyone knows of any other supplements or treatments or even diet modifications please let me know..
Renegade_muse
in
Thyroid UK
9 years ago
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