Im looking for some support and as much inf... - Meningitis Now

Meningitis Now

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Im looking for some support and as much information as possible of my 10 years old sister who is suffering TB meningitis.

denyang profile image

Im looking for some support and as much information as possible of my 10 years old sister who is at the moment in St.Vincent General Hospital in Cebu City, Philippines. At the moment my sister is being treated for TB Meningitis but not yet been confirmed as the cause.

My sister has now been in hospital for almost two weeks . Until now she had not yet wake up since December 26,2012. They are now treating her for TB Meningitis. She has had a shunt inserted and fluid removed from her brain as well as a lumber puncture and various ct scans. No one from the hospital have actually sat with us as a family and explained fully what is going on with my sister. I am just looking to find out more information and trying to get as much support for my sister and my family, as I just want to get my sister back to her normal self as a child, go to school, play and everything that she wants to do. Any help with this would be greatly appreciated. Thank you.

34 Replies

Hi

i am so sorry to hear about your sister but to help u understand meningitis better please if u can log on to

meningitis-trust.org/mening...

its the web site for the british meningitis trust nit has a lot of info that may help

Also i dont know if its possible for you to call there 24 hr help line and chat to some one who will be able to give you a lot more help

i please never forget the world gets smaller every day and this disease is world wide and we are all fighting it

good luck to your sister and your family at this time

its not a good time to get it as i know from my experience

happy new year to you and i am sure it will be a good one in the end

denyang profile image
denyang in reply to paul1224

Thank you again for your response, I had already logged on and I gather as much information that will help me understand meningitis more.

Yeah, its not really a good time and I really miss my one and only sister. I can't help but cry looking at her situation. My heart breaks ;(

Thank you for your concern and also a happy new year to you.

denyang profile image
denyang in reply to paul1224

my sister died last Jnauary 15 ;( i'm hurt, brokenhearted , I don't know, I miss my one and only sister ;( I wish I could have done something or even sacrifice my life just to make her alive.

Hi denyang, the same as above hun. Please try and get intouch with the trust as hopefully they will be able to help with your questions. Thinking of you all at this time. Xx have you sat down with your parents and talked to them? Perhaps if you can share your concerns they may be able to ask the hospital for more information on your sister? It's a very tricky illness and everybody's personal reaction is different as to their well-being. We will all be sending her our love and warm healing vibes and to you guys also. Xx Xx

denyang profile image
denyang in reply to monkeybeanie

Thank you so much for your response.. Yes, I had talked to my parents and emotionally, financially we are so down. As suggested by the doctor again, She had her ct scan result and they said she has still hydrocephalus.. there are rapid loss of some brain functions due to lack of blood supply in her brain(stroke) .. I don't know.. Is there still a chance that she would recover? The doctor said she had to be operated permanently (VP Shunt).. ;(

denyang profile image
denyang in reply to monkeybeanie

my sister died last Jnauary 15 ;( i'm hurt, brokenhearted , I don't know, I miss my one and only sister ;( I wish I could have done something or even sacrifice my life just to make her alive.

i am so sorry to hear about your sister, and what you are going threw, lets hope this site helps you, remember to talk open to your family how you feel, allow your self to cry, but you must talk open, as you to are going threw so much, thou your doctor has been open, remember there is always hope, and i wish you and your family all the warmest regards

denyang profile image
denyang in reply to Tiga

Thank you, it's really a hard time for us now, especially for my sister, every time I whisper into her ears, she tries to hold my hand and cry, ;( I will never lose hope that in time she would really recover.

Tiga profile image
Tiga in reply to denyang

You are a very brave sister, and yes never give up hope, just keep telling her she will get threw this, give her hope and all you love, i wish you all the love and healing in the world

denyang profile image
denyang in reply to Tiga

Thank you so much Tiga :)

Tiga profile image
Tiga in reply to denyang

remember we are all here for you on this site!!!! :)

denyang profile image
denyang in reply to Tiga

my sister died last Jnauary 15 ;( i'm hurt, brokenhearted , I don't know, I miss my one and only sister ;( I wish I could have done something or even sacrifice my life just to make her alive.

daffodil profile image
daffodil in reply to denyang

Hello,I was just scrolling through the site and wonder how your sister is doing?You say you talk to her and I wanted to say that is wonderful.When I was in a coma(only 9days) I could hear and it was so comforting to hear voicesHowver some people didnt say a thing and I was really worried as I thought my Mum wasnt there!.Another thing that one of the nurses did was to stroke my forhead and hands and it was so comforting and soothing.These are the few pleasant memories I have of ITU.

I do hope and pray that your sis is still fighting .Remember we are all here to support you.

denyang profile image
denyang in reply to daffodil

my sister died last January 15,2013 ;( I don't know what to feel till now,,huhuhuhuhu ..

denyang profile image
denyang in reply to daffodil

i'm hurt, brokenhearted , I don't know, I miss my one and only sister ;( I wish I could have done something or even sacrifice my life just to make her alive.

daffodil profile image
daffodil in reply to denyang

I am so very sorry to hear of your sisters death.May we all offer our sincerest sympathies to you and your family.

Please remember that the meningitis Trust is here to support you.

Your sister was lucky to have such a wonderful,caring family and she died knowing she was so loved.Remember love never dies.Your sister will live on forever in your hearts.

denyang profile image
denyang in reply to daffodil

;( I miss my sister..

denyang profile image
denyang in reply to daffodil

this made me cry.. ;(

daffodil profile image
daffodil in reply to denyang

Crying is healing,so dont bottle it up -we are all here to help you .Sending you and your family love and hugs.

denyang profile image
denyang in reply to daffodil

thank you daffodil! checking this site again. how are you?

daffodil profile image
daffodil in reply to denyang

It is really good to hear from you as I often wonder how people are.Meningitis Now is here for you and your family all the time,even after the tragic death of your little sister.

How are you coping?Maybe you wouldlike to tell us a little about your self and family,You can do this on the forum or click on my user name and that will be a private email between us -or indeed any other forum user that you would like to speak with.

I also wonder how your sister is? Take Care

denyang profile image
denyang in reply to Jennyoxford

my sister died last January 15,2013 ;( I don't know what to feel till now,,huhuhuhuhu

denyang profile image
denyang in reply to Jennyoxford

i'm hurt, brokenhearted , I don't know, I miss my one and only sister ;( I wish I could have done something or even sacrifice my life just to make her alive.

daffodil profile image
daffodil in reply to denyang

You did everything you could have done to make your sisters last days ones of love and peace.Please dont blame yourself,but feel free to share anything here. Did you know you can also privately email people on this forum .If you wanted to email me or any others you just click onttheir user name.Perhaps someone here,with experienceof loss of a family member might be able to help.

Hello, I am so so sorry for you loss. Is that your sister in the photo, you are both very beautiful girls. Take care of yourself and your family xxx

denyang profile image
denyang in reply to Jennyoxford

thank you jenny :) I wish you all the best in life :) I can smile now.

MNClaireD profile image
MNClaireDAdministrator

On behalf of everyone at the Meningitis Trust, please accept our sincere condolences at this very difficult time. Our thoughts are with you and your family.

Claire

denyang profile image
denyang in reply to MNClaireD

;( thank you..

daffodil profile image
daffodil in reply to MNClaireD

Claire,is the helpline freephone from abroad?

Oh denyang I'm so sorry the hear this. Thank you for letting us know. I agree with the above in that your sister was very blessed to have you and she will live on forever in your heart and memories. She has grown her wings and is pain free and for that alone, please take comfort. Big love to you and your family at this time of grieving Xx Xx Xx

;( thank you, your comments made me cry, even people that I didn't not personally know cares for us. thank you ..

I am so so sorry to hear your sister passed away, you have been so very strong, and i know all of us on this site, feel so very proud of you, you was a wonderful sister and you did all that you could, my grand mother used to say, ones that pass away are needed to be angles to look over others, so i feel she will be looking over you, and will be so proud to watch you grow up to be a wonderful young lady.

I know it is so hard for you darling, but all she needed to know is that you loved her and we know you did and she knew, that's all a person needs to know. Be strong my little one, and member we are all here for you, be strong and smile when you think of her, as i know she is looking down on you with a big smile to know her sister loved her so much

denyang profile image
denyang in reply to Tiga

thank you tiga :(

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