Are there any Drs in the UK that Specialise... - Meningitis Now

Meningitis Now

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Are there any Drs in the UK that Specialises in after affects of Bacterial Meningitis?

Floodle profile image
4 Replies

I had BM in 2015 and since then I get numb hands tingling fingers at night only!

I have had a variety of tests and Kings College London have now discharged me saying they can’t help!

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Floodle profile image
Floodle
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4 Replies
Bonkitty profile image
Bonkitty

I have this too. My neurologist referred me to Occupational therapy who gave me splints to wear at night , said it was carpel tunnel syndrome . The splints work brilliantly and stop all the tingling fingers .

Earthfox20 profile image
Earthfox20

I would hope that somewhere there is someone who specialises in the chronic after effects of BM. If not then surely that is what Meningitis Now should be looking for.

Fozzy81 profile image
Fozzy81 in reply to Earthfox20

Nobody prepares you for the after effects wasn’t told anything about them either until I started experiencing them , then read up on it, was told at my doctors that it’s the after effects and said you just have to put up with them

RudyLo profile image
RudyLo

Hi floodie. Like you, I was also diagnosed with BM ( in my spinal cord 3 yrs ago ). I gotta say life has been a challenge but I've adapted and recovering. Like you I also get the tingling sensations but it's focused on my right back down to my right legs constantly. Alcohol makes it worse so I stopped drinking that. Interestingly,my left side is better recovered in terms of feeling and sensation but is weaker than my right side which according to my Dr. is hyper sensitive. So weak left side with all feelings returned and strong right side with constant tingling. This said, I have also discovered that everyday exercise has helped me a great deal, there are parts of my right side that doesn't tingle anymore( right testes and rib inner thigh). I use my multivitamin supplement and get plenty rest too. I hope too that by yr 5 I will maybe get the residual tingling in the nights only. Stay strong and overcome

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