Help: Hi guys bit of advice needed after... - Meningitis Now

Meningitis Now

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shellmegandaisy2013 profile image

Hi guys bit of advice needed after 6 years of battling to get my daughter seen we’ve finally got to the paediatrician and discovered there’s no paper work or files on my daughter having meningitis and all I got was a sorry you never got the follow up but there’s no records here I’m a bit stuck on what to do I’m furious that she never got her follow up and furious that even though I’d made the complaint when she first had it because the care and after care was diabolical that she’d still been forgotten, I want to take it further I’m so cross about it there now trying to ignore the meningitis as a factor because there’s no records?? Any help or advise would be greatly welcomed xxx

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shellmegandaisy2013
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2 Replies
Starry profile image
Starry

You could try making a formal subject access request under gdpr. There are strict time limits on coming back with the info or admitting formally its absence when it should have been present and I believe that loss of someones data is a reportable breach, particularly as health data is specially categorised as sensitive and so would probably be reportable even under older rules (my oh is a qualified data protection officer). ico.org.uk/for-organisation...

How far it will get you i dont know but if it is harming the ongoing care of your daughter then Id imagine it may get some priority and at least the omission would formally go on the hospitals record. Repeated breaches can trigger audits and investigations etc.

Good luck.

honeybeesweety profile image
honeybeesweety

I don't know where you live, but legally in the US medical records are required to be kept for 8 years. Check into that. and find witnesses that your daughter had it. also keep your mouth shut about any legality or you'll scare people away just yet, till you have all your info in order.

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