I’m still trying to get my life back bu... - Meningioma Support

Meningioma Support

651 members193 posts

I’m still trying to get my life back but brain tumor surgery is a big deal to everyone and I don’t want to talk about it anymore.

1Dollydog profile image
6 Replies

Still losing hair 4 months after surgery, does anyone else have this problem? I am also taking Keppra and the only time I ever had a seizure was at the end of my 11 hour surgery

Written by
1Dollydog profile image
1Dollydog
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Gigiwith7 profile image
Gigiwith7

Start taking Biotin. it really helped hair loss .I had a large meningioma removed in march of 2021 and I am still on Keppra. Trying to get off. Had one TIA 8 days after Covid vaccine. Did not get another. Have been fine and no incidence since. I also put powdered collagen in coffee.

fluffyfur profile image
fluffyfur

Can you try a different anti seizure drug? There are others that seem to be better tolerated than Keppra.

flyingseagull profile image
flyingseagull

Hello,

I had a meningioma removal operation for a large tumour but didn't have radiotherapy. I lost a lot of hair (probably more than half the volume, as well as the strip that needed to be shaved for the op). My consultant said it was probably due to the stress of the diagnosis and operation. She advised me to continue to eat healthily and get plenty of rest.

When my hair was looking at its worst I used to wear a cotton headscarf to go out (in the summer) mainly to hide the shaved part. They had left a little tuft in the front which formed a fringe - which, strangely, helped me a lot.

About 6 months after the op my hair loss stopped and new hair started to grow. The good news was that because it was all growing back at once it was thicker than previously. Usually I cut my own hair but I found a very understanding hairdresser who merged the new growth into the existing hair so that it didn't look like I had an obvious line - and she helped my confidence enormously.

I hope things settle down for you soon and that you can look forward to a burst of new hair.

1Dollydog profile image
1Dollydog in reply to flyingseagull

thank you very very much

Paper2021 profile image
Paper2021

I’m just under 14 months post op. I was shaved ear to ear. I felt like I lost a lot of hair for the first 6 months then it returned to my normal loss when I washed my hair. It is normal to lose a small amount every day. It will get better. 💕

1Dollydog profile image
1Dollydog

thank you

You may also like...

Does going to an Neurosurgery Clinic mean you have to have surgery

Monday and the clinic I have to go to is Neurosurgery - General Cranial does this automatically mean

Stopping Levetiracetam after benign brain tumor removal

I’m 8 weeks out from surgery. I didn’t have seizures before surgery or after. The Levetiracetam is...

Have surgery or wait?

body. Since these occur only 5-10 times/year and last only 10 minutes I have not been too motivated...

Questions to ask Neurosurgeon

the first time I have ever posted myself. I recently had an MRI scan to check whether I'd had a...

Watch and wait vs radiation

I had large meningioma removed 3 months ago. The radiologist suggested i start radiation treatment...